WOMENS-HEALTH Messages for December, 1999: Frustrated!!

Frustrated!!

From: anonymous@obgyn.net
Sat, 11 Dec 1999 03:34:07 EST

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Dr M:

Okay, now I'm beginning to get really frustrated. While in hospital last week for pyelo, CT scan revealed that the cyst that they left on my right ovary when they went in to take the left tumor and left ovary out is now 3CM, having doubled in size within the last week, not to mention, having increased in pain. I placed a call to my gyn on Thursday - we are in the military, so procedure is that the clerk puts down for a telephone consult, and they have 72 hours to call you back. It's now in the wee hours of Saturday morning, needless to say, no one called back, and not only am I in horrid pain, even after taking the percocet, and still have a 100.4 fever despite taking 600mg Motrin, and still feeling queasy despite the phenergan, but I'm tired and frustrated, and yes, a little angry that the cyst was not removed while they were in there, for if it had been, I would not only be back to my normal life, but I certainly wouldn't be going back downhill. I've been taking percocet since mid-October - and I don't find that acceptable, for not only is that too long, but they are becoming more ineffective - could it be that my body is building up a resistance? I had felt good for about two days after surgery, before this right ovary pain started, so that's two good days in almost 3 months. I don't know how it is out in civilian world, but it sure is horrid here in military world getting anywhere. Each day, the pain gets worse - I can't even stand to walk around through the house, without feeling like I'm going to pass out from the increased pain from the movement. Yet, if I go to the ER at the military hospital, all they will do is give me demerol, and send me home and tell me to call my gyn next week, which, I don't want any more meds, I want the problem taken care of. I would think, that since this "cyst" on the right ovary has tripled in size during the past 4 weeks, that it could be excluded as anything to do with ovulation, wouldn't you? Even if it were something simple, just the fact that the pain is sooo bad, so constant, that at times I even throw up with it, that my temp never gets below 99.9, shouldn't that be cause enough for me to ask that it be removed? It's been on CT and U/S scans since October - at different times of the month - and it has never once decreased in size - only increased. As I am at a loss as to what my patient rights are, I feel trapped in this Tri-care system.

Do I have the right, considering the many scans, considering the pain, discomfort, etc....to ask that it be removed as quickly as possible? I mean, it's not like it's getting any better. And it's known to be there from the first scan on 10/15 - only then the left sided cystadenoma took precedence, of course. My abdomen, which had went down after surgery (before surgery, with the 11CM cystadenoma, looked 6-7 months pregnant) is now beginning to distend again - not like it was before, but noticeable, non-the-less. From a 27 waist to a 32 waist since after surgery on 11/17. I guess I just don't understand the theology of leaving a patient in so much pain, and so many other discomfting symptoms, in order to keep waiting, to see if maybe something will go away, when for 3 months, it's just been getting bigger. This cyst is more toward the right leg, which causes so much pain when walking or bending the leg, whereas the cystademona was more toward the abdomen. I can't help but wonder if it's because they didn't remove it during the surgery for whatever reason, that they want to keep watching it, hoping it will go away. But, the thing it, it's not going away, it's causing more pain, and more problems, but I, as the patient, don't know what my rights are in regards to my medical care. I just can't keep floating along like this, getting worse and worse. But I am afraid to just come out and insist that they take it out NOW!!! For I don't want to get them angry with me, or jeopardize my care in any way. But after 3 long months, of percocet, phenergan, pain, etc... losing an ovary to a volleyball size cystadenoma, and now within 2 weeks of that surgery all of this starting up, I'm just tired of hurting, and I'm very afraid of losing that ovary due to another long wait. As this appears to be doubling in size every 7-10 days, who knows where the point will be when the ovary becomes too diseased to be able to save?

Please help!!! For I am so stumped on what is my rights or what I should do or should be doing, and I am so very tired of taking pain and nausea medicines. I want to get back to my life!

Thanks, Vicki

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