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Re: Adenomyosis??

From: Robin (anonymous@obgyn.net)
Wed, 27 Oct 1999 12:51:08 -0500 (CDT)


At Wed, 27 Oct 1999, Gina wrote: >
>Hi,
>My gyn did the same thing, diagnosed me with endo and
>adenomyosis without doing anything other than a normal
>pelvic exam, and taking my history. Of course once I agreed to surgery
>and he got in there he found out I did NOT have endometriosis at all,
>but DID have adenmyosis, and also massive adhesions (that to me look
>like endo).

I hope that you are doing better since your surgery.

>
>Maybe it was the history of problems, and the Dr.'s experience hearing
>those and getting confirmation via surgery, that enables them to
>diagnose (tentatively)
>conditions without actually doing the tests to see them?

To make a statement though that someone has Endometriosis, Adenomyosis, chocolate cysts, etc., without true evidence (i.e. Lap for the Endo, US to diagnose the cysts, etc.), isn't a good idea, as it can put a fear in the patient that may be completely unnecessary. There are women that are put on strong medications (Lupron for example) that haven't been diagnosed, but the clinician feels they have the disease/disorder. Lupron is a very potent drug, that isn't without it's side effects that no one should have to bear unless it is necessary. Just an example of why it is so important to get an accurate diagnosis before taking on some of the treatments (I'm not putting down Lupron, just using it as an example to make a point....).

Hope this has helped.

--
Robin

>Gina > >At Tue, 26 Oct 1999, Robin wrote: >> >>Pam, >> >>You mentioned that the Dr. diagnosed you with Endo, Adenomyosis and >>chocolate cysts/corpus luteum cysts during your last exam. It is my >>understanding (I'm not a Dr. but do have Endo and possible Adeno~during >>my Lap, my surgeon saw some of the signs of Adeno, as well as my >>symtoms) that the only way to diagnose Endo is via a laparoscopy or >>laparotomy. Drs. can feel the ovaries and see if there is a cyst, but >>can't tell what type of cyst you have just by exam...again, that is my >>understanding. I would definitely speak with your Dr. and ask how He >>came to the conclusion that you have told us. >> >>Good luck, and please, keep us posted. >> >>-- >>Robin >> >>At Tue, 26 Oct 1999, Pam wrote: >>> >>>I am 36yrs old and have been plagued by ovarion cysts and >>>uterine pain and up until 2 yrs ago heavy painful periods >>>my GYN and I agreed that an endometrial ablation would help >>>and if it didnt cure we would then discuss our options further. I had >>>NO bleeding of any kind after the ablation >>>and the pain seemed to disappear. I still had what felt like ovarian >>>cyst pain on my rt side generaly. On my last exam Dr diagnosed 3 prob Endometriosis, Adenomyosis and >>>choclate cyst/ corpus luteum cyst + poss trauma abuse fr past childhood >>>abuse. >>>This past week-end my husband and I had relations and there >>>was a very large amnt of blood new symptom and intense pain >>>after this isnt new. Now my uterus feels as thought I am >>>about to start my period and I am alot of discomfort. >>>Reason for letter to you and not call to my Dr= new job, new >>>ins I dont want documented prob w/o ins. Can anyone tell me >>>whether I should disregard symptoms and wait or call could I >>>be having a problem that needs immediate attention? >>> >>>-- >>>pam wertz >>> >>-- >>Robin >>

--
Robin





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