WOMENS-HEALTH Messages for June, 1999: Re: adenomyosis and danazol

Re: adenomyosis and danazol

From: Cheryl (anonymous@obgyn.net)
Wed, 30 Jun 1999 07:37:27 -0500 (CDT)

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In reply to: val: "adenomyosis and danazol"

Val- I did a bit of checking myself, and found this. The story of a woman that came darn close to dying as a result of this medication. I mostly saw that it was used for endo, adeno is a form of endo, so maybe that is why they are considering it. I would push for bloodwork. A hormonal work-up, prior to doing anything. Adeno, as treated currently, here in the states, is said to be a hyst only cure. That is not the only option. Email me and I can tell you about another procedure that preserves the uterus while removing the adeno. Did the dr do a pelvic and say that her uterus felt different? The uterus takes on a totally different feeling when adeno is present. I have read that in several places and been told by one dr that same thing also.

http://dem0nmac.mgh.harvard.edu/forum/PorphyriaF/12.15.9812.18AMDanazolisDeadly

I know this is only ONE person's story. But, with such a severe side-effect, even in only one person, I would advise caution. The one sight I found said it was for endo and fibrocystic breast disease. One woman said she gained 22 pounds and had bouts with acne. Good Luck to both of you! Cheryl :o)

At Tue, 29 Jun 1999, val wrote: >
>I posted here a while back because of my daughter's pelvic pain after
>orgasm. On the strength of an ultrasound, adenomyosis has been the
>diagnosis.
>She is 33, has had 2 children and an infection after the second
>pregnancy.The medication prescribed is danazol.
>I am concerned because an internet search seems to say that danazol is
>not used for this condition, and since she seems healthy, she has not
>had blood work done to check that she has no contra-indications.
>I would appreciate any advice you could give in this matter.
>
>--
>Valerie Wright
>

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