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Nerve damage due to ovarian ca therapies.?...15 year survivor asksFrom: Rhonda (anonymous@obgyn.net)Sun, 27 Jun 1999 17:18:55 -0500 (CDT)
Post radiation/chemo nerve damage? I am 15 year survivor of stage III, ovarian cancer. Onging irate bowel syndrome ever since and I deal with that. Several years perhaps 5-6 years ago my legs started tiring more than usual, then cramping and after the cramping on going aching for days...to the point I am now and for a couple of years…no relief. Sitting, standing, walking, prone, legs raised, head raised etc. etc. No relief. This seems to have crept up ever so slowly. Aching/riredness and I was laying down a lot then …I got pheblitis and had the worse leg’s (left) veins removed…pretty much trading heriditary varicouse veins for scars thinking the vains wre a problem……this did not stop the aching. Prescribed jobst hose…this did not help. By this time I ws taking just about any kind of pain medicaiton I could talk someone out of…Tylenot with Codiene, then Aleve, Advil, Percocet, Perdodan, Darvon, Darvocet, Tylox…they helped me to get to sleep more than really helping with the aching. I took the above mentioned medications conservatively as they made my already irate bowels...nearly intollerable. ). After nearly 6 weeks of tests and seeing oncgyn, intestinal/internal specialists. I finally got into a pain clinic, no longer cared what is causing it..I needed relief as I had to return home (I live outside the USA in a territory)It was at the pain clinic after a few questions, a simple pin prick test and hot/cold applicationss that one doctor said ah ha. Have I ever had any traume to my abdomen? I got an epidural (sp?)and Neurontin 300mg X 5 daily and amitryptline 50mg at night. The epidural worked 100%, what a change…I had forgotten what it felt like to be comfortable. It wore off in a short while, perhaps 2-3 weeks..hard to say as it was gradual. I call it aching as there is no pain center, its all over. Joints do not hurt/ache any more or les than the rest does. My blood pressure is normal, Last week I was helping my neighbor trim some plants, I would carry the clippings to the wheelbarrow….the people around me watching with amazement I could handle the thorney sharp branches with no complaint. I removed my gloves to find my hands and wrists cover with puncture wounds, some had bled and I realized that I sometimes felt a thorn go through my glove and prick my skin..I had no idea of the extent of the punctures. I did not feel any pain, only pressure and minor irritation at the most. And yes it seems my arms are also getting more tired as the time has gone. Has anyone dealt with this in a patient before.? Is there a name for this? Is it accellerating? Along with the above aching intermittend episodes of a foot sinking into a hole, sensation of warm water being poured on my legs, including thighs, and lower calves to feet, a warm wet sensation that has often scared me thinking I had a urinary accident. My legs sometimes feel like they are dead wood, but they seem to work just fine getting me around. The threapies for the cancer were cistplatin and cytoxan ala IV style, a push they called it. I quite after 6 or 7 of the proposed 12 treatments. A second look operation, chemo and radiation were suggested…I declined the chemo and had 37 pelvis and full abdominal radiations done. I was diagnosed at the age of 32, I am quite happily 47 now. Thank You
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