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AdhesionsFrom: Karen (anonymous@obgyn.net)Sun, 14 Feb 1999 09:44:07 -0600 (CST)
As far as more surgery for adhesions goes, I think that is a decision that needs to be weighed carefully against what results you have had in the past from surgery and have they been positive, how is your physical condition (can your body tolerate surgery), and consultaion with your physician, possibly checking with other physicians too. Another question to ask yourself would be is surgery making this worse. When the doctor goes back in does he find the adhesions to be worse than they were before? I personally will have no further surgery unless I am suffering from something such as a strangulated bowel. My body cannot tolerate further surgery and I am terrified of surgery. The adhesions keep getting worse and the more they remove, even more come back. Sure, they temporarily free up some bowel etc but, within one weeks time they are back worse than ever. This is not true for everyone. You really have to weigh everything carefully. I've had bouts of severe purulent peritonitis, perforated bowel, undiagnosed 18 cm hematoma, and many other serious injuries and complications. I had a physician who told me he was the greatest, the best, he could do what others couldn't, he could do what I had been warned against. I was told never ever never to have a lap done. I had fear put in me about a perforated bowel. This guy told me it was a ridiculous concern...this guy ended up "butchering" me and that is to quote other surgeons and physicians I've consulted with. I won't go into details but I had serious injuries due to arogance. I love the physicians on this forum so don't jump all over me. I told this guy he would perforate my bowel and he laughed at me. I begged him not to perforate my bowel...I begged him to call my surgeon in my hometown and he laughed at me...now I have a colostomy among other things...The insurance company won't cover supplies anymore because, "you should have had the reversal surgery by now"...yeah right...I'm terrified. I use a lot of duct tape and try not to leave the house too often...colostomy supplies are costly. I don't know of any sure cures for adhesions. I know there are treatments and combination of treatments that have helped people. Everyone is different. Dr. Wiseman does not "peddle" his products as I've read in other posts. Adhesion barriers are one method of treatment and they work for some people...thats what counts...at least they work for some. Even Dr. Wiseman admits that they won't work for all but lets not knock him for researching this he may come up with something that will work for a majority...give him a chance...he is a kind hearted and caring researcher. I have used adhesions barriers but they didn't work on my body. I also form large keloids when I get a small cut or scrape. There are also other treatments such as low level lasers, yoga, herbs, manipulations, accupuncture, second look surgery, etc. It may be that a combination of methods work or it may be, as in my case, nothing at all works so I deal with the pain the best I can (utilizing many many ways of coping ranging from medication to meditaion). As far as weight ggoes, prior to surgery I was "normal" average weight. I am of average height being 5'6". The forum is a great place to share information and the various methods of treatments that have worked or not worked. I wouldn't knock any one treatment though because it may work for someone. If one less person is in pain, then, it's a good thing in my book. I have to be vigilent as far as changes in my pain level and quality of pain. I also keep an eye on my temperature and other things so I know when to go to the hospital to get checked out. Toni, you may want to ask your doctor what signs and symptoms of bowel obstruction to look for and at any sign of this condition you could go see your doctor or go to urgent care or an emergency room. The symptoms are a bit tricky but after having run to the emergency room dozens of times(and sometimes that's what it takes) I've gotten better at figuring out when I'm in serious trouble and when I may just need a shot or to take extra care of myself. I understand your fears though...I truly do. It gets really frustrating. I constantly run fevers, have an equisitely sensitive belly (tender to the touch), severe disabling pain, and I know mine isn't all adhesions but I just cannot go through surgery to find out what injury caused some of the lifethreatening problems I had and some of the symptoms I still have. The surgeon that had to fix the mess, patched me together the best he could in the least invasive manner possible. I hope everyone doesn't get too upset with me about my post. I'm not trying to scare anyone...just encourage you to check everything out and really sit and discuss it all with your physician and surgeon. The only problem I have with any doctors are the ones that don't listen to what I am saying about my particular model of body...the ones that claim to know my body better than I do even though they've only talked to me and never examined me, skim through my records, refuse to call my past surgeons, and they still want to do surgery. The physicians on the forum have to generalize but they do the best they can with the info we give them (and they do a darn good job) but, you still need to have a thorough exam and make sure any doc you see Reads your medical records and if necesarry contacts any of your past surgeons.
--
Karen
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