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AdhesionsFrom: Dharma (anonymous@obgyn.net)Thu, 6 Aug 1998 20:33:11 -0500 (CDT)
Hello. I am having a heck of a time with pelvic adhesions. My history is a long and drawn out one, so perhaps I should do it in point form (or at least parts). - I'm 32 years old and in very good general health. - First period when I was 15, heavy bleeding and extreme pain. - Many meds tried and failed through my teens and early to mid twenties. Had several diagnostic procedures including laparoscopy and laparotomy. - Finally diagnosed with endometriosis & polycystic ovaries. - Tried Lupron... absolutely no benefit. - More surgery, extreme abdominal pain. Getting worse through the years. - 6 years ago, surgeon found ovaries twisted and all "gummed up" with adhesions. Tried to free them and used Intercede. Pain reoccurred. - Complete hysterectomy and right ovary out about 3 years ago. - Left ovary and appendix removed 6 months later. - Pain continued to reoccur, saw many doctors and had every test imaginable to look for other possible causes of pain, nothing found. - Bowel obstruction - adhesions. Laparotomy. - 6 months later, laparoscopy, band of adhesion found and released. - 6 months later, laparoscopy, adhesions released. Surgeon used Sepra-film not in the prescribed fashion, but we thought it was worth a try. He broke it up into little pieces and placed it on the spots where he released adhesions. - Pain reoccurred three months later... that was 2 weeks ago tomorrow. I have had all kinds of different doctors, we've moved every year for the last 3 years so this has been difficult because it meant starting over with new doctors each time. I currently have a wonderful physician, he goes above and beyond duty to help me... a true gem! My surgeon, on the other hand, is difficult. One of the biggest problems I have is being the patient the surgeon/doctors want me to be. I am very active in my own health care, I have to be... most often, with this ailment, I have to fight very hard just to be listened to. So, I am versed in the medical lingo, I ask many questions and I speak up if I disagree or just wish to comment. Anyway, the reason why I am here is not to "bash" surgeons etc... honest! I am looking for ideas on what I can suggest to my physician in order to better help me. If he heard of any new treatments, I know he would do whatever it took to get it for me. As I said, my last surgery was done with Sepra-film, though not in the way it usually is. I am wondering about Gore-Tex and any other barrier methods of dealing with this problem. I am fully aware that surgery begets adhesions begets surgery begets adhesions... and so on. Thing is, I have tried so many other things that haven't worked... I am more than willing to look at surgery to take care of it if nothing else works. I personally believe that one of the barrier methods, being placed not just in immediate problem areas, but pretty much all over, may be a good option. What do you think? I was thinking about Gore-Tex because I understand that it doesn't dissolve like Sepra-Film or Intercede do. Not to whine, but just as some background about me. I am a happy person by nature. I am very active, have horses and live in the country. We just adopted our first child last December, and he is a wonderful and happy baby. I want to stop having to go to the hospital for injections, I want to not have this problem continue to hinder the kind of activity I wish to pursue. Any and all suggestions are much anticipated, I am completely open and willing to listen to whatever you suggest. Thank you in advance for your time.
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