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Re: Endrometriosis

From: Ellen (anonymous@obgyn.net)
Sat, 30 May 1998 16:04:37 +0000


Maxine wrote: > >Hello, I have just recently been diagnosed with Endrometriosis,
> >adhesions, and a tilted uterus. I have alot of back pain, middle and
> >lower. My question is can endro, and a tilted uterus cause back pain?
> >Also will it cause pain up to the middle of your back or just lower.

Maxine, if you have just been diagnosed with endometriosis, I'd like to provide you with a list of patient resources. WITSENDO is a particularly helpful place to discuss symptoms, and I would highly recommend _The Endometriosis Sourcebook_ by Mary Lou Ballweg.

I have endometriosis and have always had back pain (esp with menstruation). I've been told it is due to endo in the cul-de-sac area (behind uterus) and on the bowel. A retroverted uterus can also cause back pain.

Here's the list of resources --

* The Endometriosis Association 8585 N. 76th Place Milwaukee, WI 53223 1-800-992-3636 Conducts research into the cause of endo, provides information and support. $35/year membership dues.

* WITSENDO, an online support group for endo sufferers and others interested in the disease. It's a subscription only group, so your posts are private. To subscribe, send an email to: LISTSERV@LISTSERV.DARTMOUTH.EDU with the message: subscribe witsendo your name You will be sent a confirmation. Follow the instructions in the confirmation to complete your subscription. WITSENDO is a warm and caring group of women who will be happy to offer information and advice.

* ENDOMETRIOSIS RESEACH CENTER Provides information and newsletters to the endo community. 751 Park of Commerce Drive, Suite 130 Boca Raton, FL 33487 800-239-7280 http://www.endocenter.org email: EndoFL@aol.com

* ALT.SUPPORT.ENDOMETRIOSIS newsgroup is a publicly accessible newsgroup that exchanges information about this disesase, as well as information about how to cope.

* ALT.MED.ENDOMETRIOSIS newsgroup is a moderated, publicly accessible newsgroup that deals with the medical aspects of endo (no support issues).

* INCIID BOARD about endometriosis is a publicly accessible board dealing with all issues of endometriosis, but primarily infertility and endo. Go to http://www.inciid.org/bb8/wwwbd8.htm

* AOL's ENDOMETRIOSIS BOARD is a publicly accessible board available to AOL subscribers. Also hosts weekly chats.

* PATHFINDER BOARD about endometriosis is a bulletin board hosted by active endo woman, Heather. Initiated 12/97. Go to web site: http://207.25.144.143/cgi-bin/webx.cgi?14@^654@.ee84787

* PARENT'S PLACE endo board is a publicly accessible bulletin board where parents can share concerns and information about this disease. Go to: http://rainforest.parentsplace.com/dialog/get/endometriosis.html

* ENDOMETRIOSIS ASSOCIATION HOUSTON SUPPORT GROU WEB SITE - Visit our web site for more than 70 pages of information about endo, as well as an extensive list of links to a variety of endo and related web sites.

* _The Endometriosis Sourcebook_ by Mary Lou Ballweg is a must-read for anyone with this disease. You can get it at your local library, bookstore, or you can order it online at http://www.ivf.com/endosource.html

Ellen _____________________________ Ellen T. Johnson

--
_____________________________
Houston Support Group
Visit our comprehensive endo web site:
http://www.endohouston.org



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