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high AFP result

From: Alicia (anonymous@obgyn.net)
Sat, 11 Apr 1998 13:18:10 -0500 (CDT)


I am 17 weeks pregnant and was recently informed that my AFP test came back abnormal. I went in for genetic counseling on Monday and was told that my AFP level was "extremely high." Based on my level, I was told my baby has a 1 in 5 chance of having a neural tube defect like spina bifida. They immediately did a level 2 ultrasound but they didn't see anything abnormal on the ultrasound. They advised me to do an amniocentesis but I declined because of the small risk of miscarriage. They are going to repeat the ultrasound in 4 weeks to make sure that no abnormalities are found.

I was wondering if someone could tell me how accurate ultrasounds are in diagnosing neural tube defects or other conditions that cause AFP results to be high. If my baby has a neural tube defect, would something have shown up on the ultrasound at only 17 weeks? The doctor said that the shape of the baby's head looked normal and he didn't see any indications that the baby's spine was open at this time. I realize that there are many false positives with the AFP but I am still very worried. I am hoping that my doctor can give me a more definitive diagnosis when I go in my 21 week ultrasound.

Any information you can give me about diagnosing neural tube defects with ultrasound would be greatly appreciated.

--
Alicia



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