 |
 |
 |
|
|
|||
|
|
||||
|
||||
Re: Carco in-situFrom: Adrienne (anonymous@obgyn.net)Wed, 18 Mar 1998 11:24:53 -0600 (CST)
At Tue, 17 Mar 1998, Barbara wrote: > >Hi Adrienne and Laura, > >Neither one of you have told us how old you are so I guess I'll have to >skip by that part and jump right in on the "possible cancer" part. > >I've had it...I been through all the treatments..chemo, radiation...hair >loss, weight loss, major depression, complete exaustion, terrible pains >in my legs, (from chemo) you naame it I had it as did every other women >that has ever had cancer and taken the treatment to Hopefully, never >have to face it again. > >I know I face the possibility of making you angry for what I am saying >but; I'll say it anyway... If you have had Two dotors and One >Radiologist, advise you to have a hysterectomy to save you from this I >guess I can't understand why you are not Running to have that surgery. I >also had a hysterectomy 11 years ago and it could have been cancer then, >but wasn't. > >If you are unfortunate and do get cancer all I can say is you'll do >Anything no matter how terrible it is to try and get rid of it.. > >I know this because I lived it. Listen to these people they all >wouldn't advise you if they all didn't believe it was the best choice >for you. > >This is a very personal message but; one I believe I needed to share. > >Barbara > >Barbara > >At Tue, 17 Mar 1998, laura wrote: >> >>At Tue, 17 Mar 1998, Adrienne wrote: >>> >>>Hi Adrienne, >>I just went through a LEEP cone because I had CIN III/carcinoma in situ >>and adenocarcinoma in situ. My margins were also clear. For now, that >>is all I am doing besides getting paps every three months because I >>don't have any kids yet. The doctor wants me to have kids right away, >>and says that if it comes back I have to have a hysterectomy. I would >>have to argue why not another LEEP or cold knife cone instead of going >>straight to a hysterectomy. I guess having children or not would have >>some bearing on your decision. >> >>The other thing I am trying is eating plenty of foods with Vitamin C, >>folic acid, and lycopene. You can get those from citrus, spinach, >>tomatoes and watermelon. From what I have read nutrition and lifestyle >>(smoking) plays an important role. I would be leery of doing a >>hysterectomy too. Good luck to you. > >-- >Barbara Nesbitt >Editor, Women's Health at OBGYN.net Dear Barbara & Laura, Thank you for your responses. I am 34 and have already had 3 children. Laura, the reason they can't keep doing leetz or cold knife cone's is because the more they "chip away" at your cervix the least likely you are to be able to carry children. This is not my issue, but I thought I'd put it in there. As it is I basically have no cervix because I told my doctor to take as much as possible during the cone in order to have it be currative, WHICH IT WAS. The reason the doctor is urging me to have the hysterectomy, is based on the 10% chance that dysplasia or the carco comes back. The pathologist reading the cone results agreed. Based on the fact that I don't wish to have any more children, my doctor can't understand why I want to keep my uterus. I want to keep it because I equate this part of my body with my youth and vitality. I equate this part of my body with my sexuality and sensuality, and sexual enjoyment. I'm afraid of how I'll feel when this part of my body is gone. I'm one of those "strange" women who embraces her period as part of my connection to the earth and the cycle of creation. It's difficult to accept the words from a conservative scientist/doctor that I don't "need" my uterus. I have radically changed my lifestyle and nutrition in the past 6 months, as well as addressed the emotional issues that I feel were attached to this disease. All this considered, I realize that should the carco come back to an area in my vaginal canal that makes it hard to detect, and I get invasive cancer, I could have NO material connection to the earth, cuz I'll be dead and I'll be leaving my children motherless. As well, I can't even imagine the anquish of what Barbara has experienced. Still, THIS is what I'M experiencing right now. These are the feelings accompanying my decision. That and the whole surgery and the effects of not having a uterus frankly..scares me. A fear I know I'll over come, once I've become comfortable with that decision. I'm just not there yet. I am fortunate to have the luxury of a little time. Barbara I am thankful for your response and I'm sure when you read my reasons for not wanting a hysterectomy you'd like to slap me! Unfortunatly, I'm not looking at my situation through your eyes of experience, I'm looking at from where I am now. That's all anyone can do. That's just honest. I do wonder what kind of cancer you had. And I'm curious to know why you had a hysterectomy 11 years ago. Your hysterectomy didn't save you from getting cancer, as my hysterectomy will not save me from the HPV virus which seems to be the culprit in the growth of the abnormal cells and lesions. There seems to be as much chance of me getting vaginal cancer (9%)( after my uterus is removed) as there is that my carcinoma in-situ will return (10%).And I probably will have warning that it's returning with the constant paps I'll be getting. BUT there's a 90% chance that the cone proceedure that I just had is curative. Bottom line is, when it comes to percentages if you're in the lower percentile, then you are.
I'm grateful, not angry that you've responded as you did. It's good to
get slapped in the face from someone whose been through what you have.
We all make choices based on the information we can gather. The more
information and HONESTY that we can gather, the better our choices will
be.I'm still gathering. And when I make my decision about my course of
action, I'll be informed and perhaps less surprised or regretful about
the repercussions of either choice. I absolutley appreciate where
you're coming from Barbara, I'm just trying to make some informed
choices while I still have them. Thank you for your heartfelt reply. I
wish you all the best in the future. And good luck to you too Laura,
thank you for responding.
>
-- adrienne
|
|
Return to ![[ Women's Health Forum ]](http://www.obgyn.net/images_women/wh-forum.gif)
Report TECHNICAL Problems ONLY to: webmaster@obgyn.net
Last Updated: Wed Dec 2 07:03:18 2009
Women's Insurance Checklist from Auto Insurance Quote
home | medical professionals | women | industry | forums | international