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7cm ovarian tumor, swollen abdomen and discharge from both breastsFrom: Marla (anonymous@obgyn.net)Fri, 16 Jan 1998 02:14:28 -0600 (CST)
Hi, I'm 33 and new to the forum. I have a very lengthy and complicated case to ask a couple of questions about. I hope someone might be able to offer some help. My health background hasn't been very good. I lost my right fallopian tube to salpingitis in 1979. I developed pelvic adhesions and haven't been able to get pregnant since an early miscarriage in 1988. In 1993 my husband and I finally sought help with our infertility and found through a laparosopy that I had terrible adhesions around my left ovary and tube. They were cut away, only to come back and still no pregnancy. In 1994 I had to have my gallbladder removed by laparoscopy, not because stones were found, but because of pain and indigestion from it being so diseased, yet not diagnosed when symptoms first developed about 10 years prior! I was just lucky to run into my mother's excellent surgeon while I was waiting to be x-rayed for what seemed like the millionth time. He took over my case and found I needed surgery. He also found that he had to cut through so many adhesions to get to my diseased gallbladder and to look at my reproductive organs which were a mess again. He suggested that if I do ever get pregnant and carry to term, that I need to have a hysterectomy, but only then would he agree to do the surgery anytime soon because of my age. We went through more infertility testing last year and I had my third HSG. My tube was still open, but probably back to being pinned down with adhesions, so IVF was suggested. I ovulate and have regular periods, although painful each month. My husband checks out fine. We gave up on having a baby, especially since I was becoming sicker with gastrointestinal problems that we were hoping would have went away with my gallbladder surgery, but didn't! I'm so sorry for the long letter, but I feel I have to explain my background as thorough as possible in order for someone to understand and hopefully guide me as what to do next. About six months ago I was only working part-time because I felt so bad with backaches, indigestion and some diarrhea and occasional swelling after meals and around my period. I developed a bad earache one night and was put on Keflex and given Tylenol#3 for pain. I was able to tolerate the meds for about a week then July 25th I ended up in the ER and admitted to the hopsital for severe abdominal pain and vomiting. Demerol didn't ease the pain at first. Tests were ordered and they found my liver enzymes to be elevated. I can't remember the numbers now, but they were around 200 or less. No hepatitis or anything serious. My white blood count was also elevated a bit. I was sent once again to my gastroenterologist, but nothing was done for me except that I was put through more tests which were now normal, and given Prilosec and Zantac for gastritis. He suggested that I have a scope done, but I wasn't up to being poked and prodded anymore at that time so I told him that I would wait for a bit. I felt better and returned to work only to discover that I was so tired, urinating a lot! A little nauseous and very hot at times over the next few months. I was having my periods on time, but they were much lighter and not as painful. I was also having so many weird mood swings, (quit my job!) hot flashes, and gaining a few pounds and my breasts swelling, that I assumed that I was maybe going through an early menopause or something. But I didn't see my family Dr. about any of this. I kept hoping I'd feel better! During this past Thanksgiving holiday I was visiting relatives who noticed how much weight I had put on in my abdomen, but I explained how I swell a lot around my period and that was why. But maybe I better get to the doctor soon. December 9th I had to go to the Er again for pain in my back and bad swelling again in my abdomen. More blood work and sent home with pain pills and muscle relaxers and told to follow up with my gastroenterologist. I wanted to wait until after the holidays. By Christmas I was huge and looked like I was six months pregnant! I kept waiting for it to go back down, but it didn't and my low back was still killing me. I finally got in with the specialist who asked me if I could be pregnant, which I replied that I thought that I might be, but was having my periods and my LMP was Dec. 19th. He said that didn't matter and ordered a serum blood test and CBC and other tests. My preg. test was negative, but he told me over the phone that they can be wrong and that I need a pelvic done by my family Dr. So, I called and was told I couldn't be seen for a pelvic until April 98! I begged them to take me in now, but was told to go to the Er if I was in that much pain with my back, etc. I tried Planned Parenthood and they refused me also. In the mean time I thought that I was feeling a baby beginning to move inside of me! Little flutters at first and then it got stronger and was moving after meals and when I laid down was when I noticed it the most. My family and I became very excited especially after I noticed that my breasts were beginning to leak colostrum or so I thought that was what they call it. I still am leaking and it's a whitish or pale yellow sometimes, but mostly clear and sticky fluid that is coming out of my itchy nipples. I'm also still feeling something moving inside of me! So I got a new Doctor and saw him this past Monday. He checked me for pregnancy, which I just knew would have to be positive because every one I have been running into tells me I look 6 or more months pregnant! I mean I can't wear any of my clothes I was a size 6/7 and al of the sudden I can't my jeans any longer and am growing out of my sweats. And with all of my symptoms, the nausea, the urgent trips to the bathroom, my breasts swelling and leaking. I was so surprised to find that he didn't feel that my uterus was enlarged and my urine test was neg. I cried like a baby and asked what was wrong with me? The Dr. told us it might be a hormonal inbalance and wanted to check this out and do another blood serum test and also an ultrasound because I have the pelvic swelling and fullness. I had the ultrasound done Wednesday and saw the Dr that day. He told us that I have a huge grapefruit size tumor on my right ovary and several smaller cysts. I'm not pregnant and that all of my hormone tests are normal. I think I went into shock! I can't understand why my breasts are leaking and look like they do. He told me some antidepressants will do this. But I have been on Zoloft for years, so I still don't understand why now. He told me maybe the tumor is causing this. He got me an appointment that I couldn't get with my GYN for next Tuesday and told me he hoped that the tumor is benign! Now I'm left with this fear of cancer, no one to talk to about it. I'm still leaking colostrum and feeling a "baby" inside of me and getting sick when my stomach is empty and urinating more than ever. I look and feel so pregnant and find that instead of a baby I have a big ole' tumor that is making me ill. My back is still hurting and I started my period right on time today! I'm so sick and so confused and just wonder if after reading my long history leading up to this scary ordeal, if anyone might have some answers or suggestions for me. I am wondering if I might have an abdominal pregnancy that wasn't seen on the ultrasound because once the technician found the tumor he shot out of the room to show the Radiologist and told me to get dressed. He never scanned above my ovaries and uterus. Maybe it's gas I'm feeling, but I have never had gas feel like this before, but then again I never had a big 7cm tumor shoving my intestines over to one side before! The little jabs I keep feeling is mostly on my left side and is very active! The tumor is on my right side. I hope that I haven't lost my mind! I've only felt that I was pregnant since I first felt a flutter and then my breasts started leaking. It wasn't like I brought on a false pregnancy or anything by wishful thinking. At first I was just thinking that I had colon problems and maybe early menopause. I wonder how long this tumor has been inside of me making me sick??? I'm also having some numbness and discomfort in my right arm and sometimes my leg. I guess it's pressing on nerves. I just want the darn thing out of me as quickly as possible. I do hope I don't have cancer and won't need a hysterectomy no matter what the outcome should be. I'll be 34 this month and do want to be able to try invitro when we can afford it someday in the near future if I ever start feeling better! I hope someone can help me with some kind of an explanation for my breasts leaking and tell me more about tumors and what I might ask my Doctor Tuesday. Thank you so much for taking the time to read my long history, my fears, and any help you might be able to offer. Marla
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