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Re: Vulvadynia

From: Dina (anonymous@obgyn.net)
Thu, 8 Jan 1998 23:02:19 -0600 (CST)


At Mon, 21 Apr 1997, Melinda wrote: >
>My mother is an obgyn nurse practioner. (Forgive me if my terminology,
>spelling or etiquette is lacking--I am completely out of my element here
>and wading through the best I can.)
>
>Mother has a patient with chronic vulva inflammation. Patient
>experiences an intense burning sensation and is sensitive to the touch
>Sounds like vulvadynia and I've gathered that info I've found at this
>site. However, I said I'd post to a discussion group, so I'm posting.
>This patient apparently also has no redness, itching and my mom says
>that everything looks okay (literally, not figuratively). The patient's
>pain is also farther away from the vaginal opening than many of the
>descriptions I've read so far.
>
>Comments, ideas, suggestions or other would/will be greatly appreciated.
>Thank you.
>
>--
>Melinda Montgomery

Dear Melinda,

I'm am a 24 year old female that has suffered unknowingly for 5 years with vulvadynia. Finally, just last year, I was diagnosed with this unknown metabolic disorder. Thanks to the help of a friend,she found an article in a magazine about this disease. From there, I was able to contact the VP Foundation in North Carolina.The VP (vulvar pain)Foundation is a non-profit organization that provides valuable information to not only vulvar pain disorders but also other chronic pain disorders. The Foundation has been a great informative source of info. on my disorder as well as others.This foundation has even published a cookbook known and tested by it's members and doctor's, that has eliminated pain for alot of women.Please consider this an option and inform others that my be suffering with this very painful disorder.Again I say , that the VP foundation has been very helpful.One more thing, the foundation also provides support groups in some areas.I hope this has been helpful to you. I shall leave the address of the foundation at the bottom of this letter.

The VP Foundation Post Office Drawer 177 Graham, NC 27253






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