WOMENS-HEALTH Messages for November, 1997: Re: adenomyosis/hysterectomy.

Re: adenomyosis/hysterectomy.

From: Amy (anonymous@obgyn.net)
Thu, 6 Nov 1997 17:32:01 -0600 (CST)

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At Wed, 5 Nov 1997, anonymous@obgyn.net wrote: >
>Hi, my name is Julie Davis and new to the list.
>Just looking for general feedback...
>Was diag w/ endo '90 via lap; 2 normal pregnancies '93 and '95;
>recurring pain 2 weeks after baby born.. On depo provera since July '95,
>last shot June '97 with some pain relief until May of '97 when I began
>w/ the usual side endo pain and severe cramping, bloating, bleeding and
>heaviness in lower abdomen. Had lap w/ hysteroscopy Aug '97..endo found
>on ovaries, lasered off. Pictues from hysteroscopy show "spots"
>dispersed throughout uterus; like taking a paint brush and flinging
>paint drops on a wall. My doc said my uterus is markedly enlarged, soft
>and boggy. That, coupled w/ my increasing worsening symptoms; pain and
>cramps running 7 on a scale; daily bleeding severe to almost
>nonexistant, severe bloating; prompted my doc to diagnose me w/
>adenomyosis. She has stated that until pathology is done, it cannot be
>certain, but she feels that is what is going on. I have decided not to
>bother w/ an MRI as it will not change my course of treatment at this
>point.
>Lupron is not an option for me; bcp's aren't helping, and the provera
>stopped being affective. I have decided to have a hysterectomy, uterus
>and cervix only, to hopefully "cure" my adeno. I realize the possible
>endo/estrogen problem in keeping my ovaries, but will deal w/ that
>later. My endo pain is gone since my August lap; my pain and discomfort
>is all mid-abdomen, and I want to get this sick organ out of me; the
>pain has begun to consume my life.
>Just looking for thoughts on my diagnosis and treatment decisions.
>Thank you very much for your time; sorry this is so long! Julie Davis
> jules12@webtv.net

Hi Julie, I've been through alot of the same thing. I was diagnosed with adenomyosis last Oct'96 with all the same symptoms, pain and bleeding, but also severe constipation (I live on Senekot) from my uterus lying on my colon. My doctor thought all I needed was a uterine suspention, but when he performed the lap, he discovered the adenomyosis, therefore he did nothing. He put me on progesterone only birth control pills and it seems to get better, then worse - ups and downs! I'm only 29 and have one child but would really like to have another. I've never heard of any cases where someone had a baby while having major adenomyosis and if there are any problems. My doctor says it's risky the longer I wait and hysterectomy is the only answer. From what I've seen in this forum, women with this seem to go down the same path with treatments and ultimately opt for the hysterectomy. It's hard to hear no success stories unless you have surgery, but if I didn't want one more baby, I would do the same. Life is too short to live in pain when at least there is a solution. Good luck to you and keep us posted after the surgery.

--
Amy

Next message: Terri: "Postpartum Hemorrhage"
Previous message: Harvey S. Marchbein, M.D.: "Re: Ovarian Cysts"
In reply to: anonymous@obgyn.net: "adenomyosis/hysterectomy."
Next in thread: Garry E. Siegel, M.D.: "Re: adenomyosis/hysterectomy."

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