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Re: adenomyosis/hysterectomy.From: Donna (anonymous@obgyn.net)Thu, 6 Nov 1997 15:21:36 -0600 (CST)
At Wed, 5 Nov 1997, anonymous@obgyn.net wrote: > >Hi, my name is Julie Davis and new to the list. >Just looking for general feedback... >Was diag w/ endo '90 via lap; 2 normal pregnancies '93 and '95; >recurring pain 2 weeks after baby born.. On depo provera since July '95, >last shot June '97 with some pain relief until May of '97 when I began >w/ the usual side endo pain and severe cramping, bloating, bleeding and >heaviness in lower abdomen. Had lap w/ hysteroscopy Aug '97..endo found >on ovaries, lasered off. Pictues from hysteroscopy show "spots" >dispersed throughout uterus; like taking a paint brush and flinging >paint drops on a wall. My doc said my uterus is markedly enlarged, soft >and boggy. That, coupled w/ my increasing worsening symptoms; pain and >cramps running 7 on a scale; daily bleeding severe to almost >nonexistant, severe bloating; prompted my doc to diagnose me w/ >adenomyosis. She has stated that until pathology is done, it cannot be >certain, but she feels that is what is going on. I have decided not to >bother w/ an MRI as it will not change my course of treatment at this >point. >Lupron is not an option for me; bcp's aren't helping, and the provera >stopped being affective. I have decided to have a hysterectomy, uterus >and cervix only, to hopefully "cure" my adeno. I realize the possible >endo/estrogen problem in keeping my ovaries, but will deal w/ that >later. My endo pain is gone since my August lap; my pain and discomfort >is all mid-abdomen, and I want to get this sick organ out of me; the >pain has begun to consume my life. >Just looking for thoughts on my diagnosis and treatment decisions. >Thank you very much for your time; sorry this is so long! Julie Davis > jules12@webtv.net Hello Julie, My name is Donna and I have been told I probably have adenomyosis also. I don't have severe pain, but do have the bloating and cramping with heavy and frequent menstral cycles. Sometimes I have sharp pains where my ovaries are. Is that the kind of pain you are talking about? I was told I needed to have a hysterectomy to remove my uterus and cervix. I have tried just about everything and am tired of being miserable all the time. I am sch. for surgery Nov. 18th. I hope you can get some relief soon. I will let you know how I feel after my surgery if you would like. I have read so much about several treatments, but it almost always returns. I want to get rid of this problem once and for all. I don't like not being able to plan anything because I am always on my menstral cycle. I also am wondering if I have endometrosis. My mother and Grandmother both had hysterectomy because of endometriosis. They both said they felt wonderful after the surgery. I know this isn't much help, but just wanted to let you know you are not alone. Best of wishes to you, Donna
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