Re: adenomyosis/hysterectomy.
From: Penny (anonymous@obgyn.net)
Wed, 05 Nov 1997 21:32:28 -0500
Julie,
Your endo sounds very close to mine. Do you alos have
a problem with adhesions? I have had many surgies
including Hystorectomy 94 including the removal of my
right ovary. I have now had my left ovary removed twice
96 & 97. It looks like a piece is still there. My pain level
only averages to a 2 some days much higher. I am trying
to stop the inevidable (another surgery)
Good luck to you. Hopefully there will be a miracle drug
or a medical cure before our daughters have to deal with this.
Penny E-mail: pes@crosslink.net
At 12:32 AM 11/5/97 -0600, you wrote:
>Hi, my name is Julie Davis and new to the list.
>Just looking for general feedback...
>Was diag w/ endo '90 via lap; 2 normal pregnancies '93 and '95;
>recurring pain 2 weeks after baby born.. On depo provera since July '95,
>last shot June '97 with some pain relief until May of '97 when I began
>w/ the usual side endo pain and severe cramping, bloating, bleeding and
>heaviness in lower abdomen. Had lap w/ hysteroscopy Aug '97..endo found
>on ovaries, lasered off. Pictues from hysteroscopy show "spots"
>dispersed throughout uterus; like taking a paint brush and flinging
>paint drops on a wall. My doc said my uterus is markedly enlarged, soft
>and boggy. That, coupled w/ my increasing worsening symptoms; pain and
>cramps running 7 on a scale; daily bleeding severe to almost
>nonexistant, severe bloating; prompted my doc to diagnose me w/
>adenomyosis. She has stated that until pathology is done, it cannot be
>certain, but she feels that is what is going on. I have decided not to
>bother w/ an MRI as it will not change my course of treatment at this
>point.
>Lupron is not an option for me; bcp's aren't helping, and the provera
>stopped being affective. I have decided to have a hysterectomy, uterus
>and cervix only, to hopefully "cure" my adeno. I realize the possible
>endo/estrogen problem in keeping my ovaries, but will deal w/ that
>later. My endo pain is gone since my August lap; my pain and discomfort
>is all mid-abdomen, and I want to get this sick organ out of me; the
>pain has begun to consume my life.
>Just looking for thoughts on my diagnosis and treatment decisions.
>Thank you very much for your time; sorry this is so long! Julie Davis
> jules12@webtv.net
>
![[ Women's Health Forum ]](http://www.obgyn.net/images_women/wh-forum.gif)