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Mayer Rokitansky Kuster Hauser Syndrome/absent uterus/vaginaFrom: Elizabeth (anonymous@obgyn.net)Wed, 14 May 1997 19:35:49 -0500 (CDT)
Hi. I have been diagnosed with Mayer-Rokitansky-Kuster Hauser Syndrome (MRKH) and I was looking to find some individual who have been diagnosed with the samd disorder or who have been diagnosed with MURCS Association (asociated with Klippel Feil Syndrome (KFS, a similar disorder.
-- Hi, My name is Elizabeth. I have MRKH, a disorder where you dont have a uterus and/or a poorly formed vagina. I'm 16. Anyway, were you given a diagnosis for your over condition-a syndrome or something? I live in VA and go to Johns Hopkins Hospital-great doctors there. I'm having kidney tests done soon. MRKH can affect your kidneys, uterus, vagina,renal system, and even your skeletal system. To my knowledge I have a mild case. Hope to hear from you soon. Elizabeth P.S. Do you have a period? If you don't mind me asking. Bye.
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