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Re: ENDOMETRIOSIS: Sampson's Theory - infoFrom: Scarlett (anonymous@obgyn.net)Sun, 26 Apr 2009 18:51:07 -0500 (CDT)
Thank you for your response, but it doesn't answer my very valid questions. It just reiterates some of my points (Dr. Liu) and again shows yet another clear example of a gyn blindly holding on to Sampson's theory (Dr. Hill). Without any note of arrogance at all, I truly believe that many endometriosis patients know more about this disease than most doctors do. I am shocked and amazed when I ask a doctor a question about endo research, etiology or overall developments on this disease and realize that I, the patient, know FAR more about this disease than the doctor! I realize there is a lot of medical literature to keep up with, but when a gyn has never heard of autoflourescent laparoscopy, or "atypical" recognition or complete deep excision or that Sampson was wrong I really have to question their education and desire to actually help us. For example, I had a laparoscopic excison of endo and a mini laparoptomy to excise an endometrioma in my abdominal wall in March. Following surgery, my doctor told me she completely excised several large areas of atypical pelvic endo. The resident assisting my doctor (who is a well knowen endo specialist in Canada) told me the following morning that they had found no endo, only blood vessels, which they removed. How can she be so ignorant to the fact that it was endo (subtle white lesions, NOT blood vessels) when working alongside a top endometriosis specialist? Did she not observe the procedure or pictures (clearly endo)? Did she not read the operative report or personal letter from my doctor both of which clearly say the atypical areas are very likely endometriosis, pending biopsy diagnosis? Will she believe the biopsy reports if she sees them? The clear incompetence of many doctors regarding endometriosis is absolutely appalling and they should be incredibly embarrassed regarding their profound lack of knowledge. I seriously have to wonder if 10% of men were experiencing heavy bleeding, severe chronic pain, infertility, pain with intercourse, and GI pain and their only options were frequent surgeries, castration or hormones, including those with potentially permanent feminizing side effects, what would the medical and public reaction be? Would it be considered a medical crisis, with public and private funding, awareness campaigns, and doctors vigilent in making correct diagnoses? Or would these men suffer up to a decade, being repeatedly dismissed, told it was "normal", advised to take over the counter analgesics that have little to no effect, or told that it was a maladjustment to their masculinity or psychsomatic? I think it would be the former. It is incredibly sad to think that in 2009, women are still largely believed to be "hysterical" and (mostly) gynecological diseases are viewed as a low priority for intensive research, accuracy, and public/patient/medical awareness. Why do so many doctors constantly ignore and dismiss and minimize our severe pain? Do they just not care, or do they just not believe out pain when we come to them for help? Is their a general conscious or subconscious belief that women's pain is psychosomatic and not worthy of a full investigation? Are we nowhere near as evolved as we consciously believe we are? Think about it and be honest with yourself. I make many interesting and valid points.
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