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Re: PCOS: PCOS - lost in tranlation?

From: anonymous@obgyn.net
Thu, 6 Nov 2008 16:59:35 -0600 (CST)


I am sure some of the others will answer, but some of the things you have said suggest PCOS to me....skipping periods...cysts on your ovaries...and possibly some hormonal changes. Being on the pill clouds the issue, and makes it hard to know what your normal cycles are like, and all they do is regulate your cycles. Are you working with an endocrinologist who is testing you with blood tests. If you have PCOS, there are other risks, such as diabetes and having difficulties conceiving, and sometimes long term infertility issues if not monitored appropriately... So, you need to do your research on PCOS, see how it fits, and then ask your OB for a referral to an endocrinologist. More info about PCOS: http://home.comcast.net/~creationsunltd/pcos.htm You question is not a dumb one...you are seeking information.

1. When trying to find >translations for my medical history to ask questions and see doctors, I
>came across “PCOS” for what I had.
>However, now that I had a miscarriage, the information about PCOS on the
>web does not match what my doctors back home always explained to me that
>I had, and I’m wondering if I’m just filling medical files with
>inaccurate information? I’ve just seen in the web that there’s a
>difference between “polycystic appearing ovaries” and PCOS, and I’d like
>to know what would be the right thing to tell doctors. Here is what my
>doctor always explained to me about my condition:
>(1) I don’t have a “disease”. I have a state that appeared 3 times in
>my past (multiple cysts in my ovaries and, therefore, no ovulation)
>which may or may not happen again;
>(2) At this moment, everything is fine and I’m considered an absolutely
>normal person from this point of view
>(3) After 7 years in birth control pills (time this long due to
>sex-active life, not due to the diagnostic), I’d take 6-12 months to get
>pregnant, everything being normal as it was in my last appointment. This
>would be the average time for everybody on birth control. (I got
>pregnant in 5 months)
>(4) I was also told I have no reason to think I’m in more danger to
>miscarry than any other person, and that, again, I don’t have a disease…
>I HAD a state in the past and I no longer have it. They always refer to
>it as “polycystic ovaries”, but there’s no addition such as “appearing”
>or “syndrome”.
>(5) I was never mentioned of anything I’m in risk for regarding this. My
>doctor is very experienced and has always explained everything to me in
>details, so she would have said anything further. All that I needed was
>the birth control to regulate the cycle, but not that it was absolutely
>necessary, if I remember it correctly... it was more to avoid problems
>in the fture when I decided to get pregnant.

--
Pat Sonnenstuhl, CNM



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