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Re: CHRONICPAIN: Dr. has theory, I just dont understand

From: D (anonymous@obgyn.net)
Tue, 28 Oct 2008 10:05:26 -0500 (CDT)


Monday night I had intense pelvic pain. Nothing seemed to work, I have vicodine, pamelor, tens unit. I've been on lupron for 3 injections. I get the pudental/ilionguinal nerve block shots

So I e-mailed my doctor who's 1 1/2 hours away & told him, maybe lupron isn't working. The nurse called & explained it this way.. . .

lupron shuts the ovaries down & stops my period ((I had novasure, I don't bleed)) their belief is that I have cyclic pain. after 6 months of lupron they'll let my overies turn back on & if I get cyclic pain back-- I'll need a hysterectomy.

She said I'll have flare ups, depending on how I bend, twist, stress, & I'm to stay on the vicodin to not give the pain a foothold. Be sure to keep up physical therapy at home, kegles ect.

MY VIEWPOINT is. They originally told me that I have a nerve running through my pelvic floor & it's pinched causing pain. that is the reason for physical therapy, I started to do arobic exercised the nurse said no-- that's too much & I'll get a flare ups.

what I don't understand is if I'm on 3 months of lupron, then by now my cycle is shut down. & If I'm having bad flare ups now, then it proves to me that a hysterectomy wouldn't stop the flare ups.

It just doesn't jive, If she will admit that different movements & stress causes flare ups, then what does that have to do with cyclic pain?

Do you have any opinions on this?

Thanks, I'm confused Diane

At Sun, 26 Oct 2008, Robin wrote: >
>At Sat, 25 Oct 2008, D wrote:
>>
>>I see an obgyn/pelvic pain specialist for pelvic pain, but he's almost 2
>>hours away, over winter, I like to get a more local obgyn to possibly
>>help me with these injections, I get them every other week. The obgyn's
>>that I've asked so far seem surprised that I'm getting this done because
>>they don't do it.
>>
>>Is this type of injection really that unusual?
>>
>>thanks
>
>If I recall correctly, there is one Pelvic Pain Specialist with which I
>am familiar, who does this procedure. Again, IF I am recalling
>correctly. My Endo Specialist does NOT.
>
>It is my understanding most OBGYN's do not do this procedure so you may
>need to locate a Pain Management MD who does.
>
>I hope this helps!




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