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Re: OVARIANPAIN: Can an elevated CA-125 be related to Lupus?
From: dj (anonymous@obgyn.net)
Sat, 11 Oct 2008 14:37:01 -0500 (CDT)
Thank you for your prompt reply. The nausea has increased to such a
degree that I have been unable to eat anything since Wed. mid day, 2
and half days now. Although I have obviously noted a loss of weight on
the scale (12lbs) my trousers are still tight to button. I have also
had what would be considered a low grade fever consistently for months.
It is now Saturday, if I still have been unable to eat by Monday I will
call the gyn-onc and rheumatologist, but part of the problem I am
running into is that the gyn-onc doesn't seem to want to see me or hear
from me until things get worse (the CA-125 goes up higher) and the
rheumatologist doesn't seem to think it's lupus. My calls to them both
Thurs. went unreturned. Although the endovaginal ultrasound was
extremely painful, it did not apparently show anything. What infections
could cause an elevating CA-125, constant pelvic pain, low fever and now
nausea (with apparent bloating)?
I understand you can not diagnose, I am just hoping to find the right
provider and get help.
Thank you again.
At Thu, 9 Oct 2008, Dr. Herbert A. Goldfarb wrote:
>
>Message posted on Dr. Herbert A. Goldfarb behalf by: Hope Waltman,
>Fibroid and Women’s Health Forum Moderator
>
>Obviously some problem exists to have a rising CA 125. Although this
>test is
>non specific and can rise from a number of problems including infection.
>I
>suggest an MRI of the Pelvis. If the ultrasound was not endovaginal,
>imaging ovaries is difficult.
>
>Dr. Herbert A. Goldfarb
>New York Downtown Hospital, http://www.nohysterectomy.com
>
>Note: Opinions expressed here are for educational purposes
> only and, as such, do not constitute a physician-patient
> relationship. This information is not intended to supplant
> the need for you to consult with your physician prior to
> choosing therapeutic options and/or interventions.
> ** Private emails cannot be entertained due to time
> constraints; consequently, they will receive no response.
>
>At Thu, 9 Oct 2008, dj wrote:
>>
>>I have been experiencing severe, constant (day & night) pain of my left
>>ovary since mid May. I have been cleared by a Neurologist, Urologist &
>>GI Doctor. I have consulted a Gyn-Onc. Ultrasound appears clear, but
>>the CA-125 has been elevating. First 43, now 55. For the past 10 days
>>my right ovary is experiencing the same pain. I am literally disabled
>>by this pain. It is difficult getting out of the car. I can not stand
>>for long, I can not walk far. I am bloated and swelled so badly last
>>week one of my doctors gave me diuretics. I can barely eat, but I've
>>gained weight. I'm nauseous. The ultrasound was extremely painful. My
>>periods have become irregular and for the last 6 months last only 1 day
>>or less---as little as 8 hours---and then done, no spotting. I have no
>>'cramps', I would not consider the ovarian pain cramps, it is so extreme
>>and localized. I do have lupus. Now that both ovaries are affected, I
>>am wondering, can lupus attack ovaries? Are there anti-ovary antibodies?
>>Would the CA-125 escalate due to lupus activity? Or am I grasping at
>>straws because if it is lupus I know there will be a treatment and
>>potential relief?
>>
>>The Gyn-Onc wants me to have another CA-125 at the end of the month and
>>consult another doctor. I'm exhausted and don't know how I can bear
>>this pain much longer.
>>
>>Thank you
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