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Re: CHRONICPAIN: lifelong severe primary dysmenorrhea (i.e., no endo)
From: anona (anonymous@obgyn.net)
Thu, 29 May 2008 21:31:00 -0500 (CDT)
There IS the possibility that the doctor who did your surgery missed the
endo. It happens more than you would think. Endo lesions come in a
variety of colors, including clear. It can also be microscopic. Unless
your surgery was done by one of the nation's top specialists (and there
are only a handful), you may have endo that was missed. Dr. Albee at
the Center for Endo in Atlanta, GA is one of the specialist. He does
nothing but endo surgery and knows a lot about it. Maybe you should
consider looking into seeing a specialist. :)
At Sat, 17 May 2008, carolyn johnson wrote:
>
>hello: my situation seems to be unusual but i know that there must be
>others out there like me! I am 47 years old, and have had disabling
>primary dysmenorrhea since getting my period at thirteen. never given
>birth, have had a laparoscopy (around age 41) which ruled out endo. in
>terms of bleeding, my periods have never been heavy.
>
>as a teenager, i was taken to the emergency room a couple of times with
>the pain before my family and i understood that it was menstrual cramps,
>and the doctor prescribed oc's. thankfully, this helped tremendously
>for most of my young adulthood. in my early 30's, however, those
>beneficial side effects ended -- my dysmenorrhea came roaring back and
>grew steadily worse, to the point where i was in bed several days a
>month and even had uterine cramping during the month without bleeding.
>this cramping was very intense, and i have been forced to, for example,
>lie down in public (on park benches, etc) until i could walk again.
>NSAIDS are not even slightly effective in lessening the pain of these
>contractions. in particular, this between-period cramping could be
>brought on by exercise. (i'm an active person, but had to give up
>running because a few minutes into a run, i would be on the ground in
>pain.)
>
>my doctor has begun to try a couple of different treatments for me since
>i was thinking that surgery of some kind was my only recourse. lupron
>for a year completely stopped my periods and the pain -- that was the
>very best year i had had in a long time! but my doctor felt concerned
>about long-term use of lupron, even with add-back. currently i am
>taking aygestin alone (5 mg per day). This is just as effective as the
>lupron was (interesting since the combined oc's aren't effective for my
>cramping). i've taken it for about 6 months.
>
>So there's my story! my doctor says that i am the only patient like this
>whom she has seen -- i suppose there is something idiosyncratically
>strange about my reproductive system. Questions: any thoughts about
>what's going on with me? and is there any harm in my continuing to take
>the aygestin long-term, given that it is working? if so, any suggestions
>as to what direction to go in next?
>
>great thanks for your consideration....
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