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Re: CHRONICPAIN: lifelong severe primary dysmenorrhea (i.e., no endo)

From: carolyn johnson (anonymous@obgyn.net)
Thu, 29 May 2008 20:12:49 -0500 (CDT)


thanks for your response, AmyAngel! yes, i am lucky that my doctor now takes me seriously and wants to help -- but you see how long it's taken me -- i.e., i am about 20 years older than you are. my doctor was slow to believe me as well, and i endured many years of having her (and others) tell me to try exercising more, try some motrin, etc. i finally said to her, nearly in tears, that i shouldn't have to go on until menopause this way... and she agreed to try some unconventional treatments. as i mentioned,i have actually had a really good year -- i've never before had a year like this without unpredictable labor-like contractions disrupting my life! i'm really hoping that others with our unusual symptoms will write in, and/or that one of the doctors will register an opinion. you know that look that people give you when you say that you have cramps? like, big deal, take a midol! well, there are some of us who have some other, truly disabling version of cramps (that can come whether you have your period or not) .... i'm hoping that some ob/gyn will want to help us figure it out. again, i really appreciate hearing from you -- thanks for taking the time to write.

At Thu, 29 May 2008, AmyAngel wrote: >
>Hi Carolyn,
>
>I can't offer much in the way of suggestions of what's wrong with you,
>or directions to take, but I just wanted to post to say that I've been
>going through a rather similar situation, just over less years.
>I'm 24, and although I had dysmenorrhea right from the start of my
>periods (at 12), I've had increasing and changing pain since just before
>I was 16. I too have had a laparoscopy (at 16) which didn't reveal any
>endo. I've tried oc's, however they failed to have any effect on the
>pain. I too have had pain during the month outside of periods, and I
>understand what you mean about having to lie down in public until you
>can walk again...
>You're lucky though to have a doctor who wants to help you....because
>I'm young, I've had trouble getting any doctor to take me seriously.
>
>I hope that someone else can post an answer that helps you (and perhaps
>me as well!) or that you can get some relief soon!!
>




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