Re: PTLSTUBAL!: Why was I not warned of Post Tubal Ligation Syndrome?
From: Hope Waltman (anonymous@obgyn.net)
Sat, 26 Jan 2008 09:13:52 -0600 (CST)
"Post-Tubal Ligation Pain"
http://www.obgyn.net/displaytranscript.asp?page=/avtranscripts/carter_elminawi
Dr. El-Minawi: "I can tell you we had a series of 978 cases which were
presented AAGL a couple of years ago, 80 cases of which were post-tubal
ligation syndrome, 60% of those had actual hemographic findings of
pelvic congestion, and among those 80 patients there were at least 30-40
patients with additional pathological findings including adenomyosis."
Regards, Hope Waltman, Fibroid Forum and WH Forum Moderator
http://www.hopeforfibroids.org
http://www.doctorsinfoweb.com/doctors/whatsnew.htm
At Fri, 25 Jan 2008, Regina wrote:
>
>I would like to know why women aren't told about PTLS?! I had a tubal
>ligation done on April 9, 2007 after having my twins, the very first
>cycle after I had my babies, I have been living a life of heck since
>then and haven't been the same, I have over 35 symptoms and I'm still
>counting, I have body hair loss, don't shave anymore. The same as if I
>was to have a hysterecomy. I have joint pains, I'm loaded with cysts, I
>have fluid under my coldasac, I have brain fog like you wouldn't
>believe, I throw up and get the runs when I ovulate. I had really bad
>panic attacks and hot flashes, memory loss, skin is wrinkling like you
>wouldn't believe, my 85 year old grandmother has nicer hands than me now
>:( I pass brown clots when I ovulate, I was NEVER on BCP's, I had a
>tubal reversal in hoping that something would change, nothing really
>did, I'm lost here. I even showed my mom this clot that I was passing
>and she said something is wrong. Every single doctor that I've been to
>told me it's all in my head and that I'm depressed and need to go on
>anti depresents, I've been to so many doctors that I've lost count in
>the last 9 months. My period is so heavy it makes me sick. I can go on
>and on about this. What gets me angry is that I was never warned of
>PTLS, when I went to my GYNO for help she just laughed when I mentioned
>it, I went to the ER 3 times, the first two times I mentioned PTLS and
>that maybe I'm suffering because of this and they sent a therapist over
>to me, the third time I went, I learned not to say anything about PTLS,
>they never sent a therapist, come on now. Let me say that I can't wait
>for the day that this comes out and hits the fan! I don't believe for
>one minute that GYNO's don't know about PTLS, there are way too many
>women complaining of the same exact symptoms for this to be in our
>heads. I am now going to a Reproductive Endo that helped me get
>pregnant, she monitored me the entire time I was trying to get pregnant
>so she knows all my hormones and my history of how my body should be
>running, all the tests came back that I'm not making enough estrogen,
>progestin, and my FSH is off. She even stated to me that something is
>definitely wrong here.
>
>I would LOVE to know why women are not being warned that "MAYBE" just
>"MAYBE" something can go wrong when doing a tubal, if SO many women are
>complaining after they've had one?!?
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