Re: ENDOMETRIOSIS: CA-125 in Endometriosis, 8.4?
From: T. Lyons, MD (anonymous@obgyn.net)
Sat, 22 Sep 2007 08:25:41 -0500 (CDT)
Message posted on T. Lyons, MD behalf by: Hope, Fibroid and Women’s
Health Forum Moderator
The multiple laps don't sound good and Ca 125 of 8.4 is not elevated.
Your research is correct with >30 being the magic number. Perhaps you
would do better with another opinion.
--
T. Lyons, MD
ATLANTA, GA
http://www.thomasllyons.com
http://www.endocenters.net
http://www.obgyn.net/fibroid-resource-center/?page=/all_advisors/T_Lyons
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At Thu, 20 Sep 2007, Robin wrote:
>Christina,
>
>Hopefully Dr. Lyons will answer this question as he is one of the well
>known Endo Specialists in the country. Having said that, allow me to
>add to hopefully calm your fears a bit.
>
>Endo is very well known to cause a rise in the CA125. My Hematologist,
>also an oncologist said he does not do a CA125 on any woman unless she
>already has a cancer Dx. Even stress can raise the number.
>
>Your best bet is to seek out an Endo Specialist (Tom Lyons, Robert
>Albee, Ken Sinervo, David Redwine are just a few that come to mind...Dr.
>Albee is my Dr. and has been for well over 9 years) and have a thorough
>surgery. Many surgeons use ablation and just get the first layer or two
>of Endo, leaving endo behind. So, you might get a little relief,
>however, it is only temporary. Do yourself a favor and, in the long
>run, save yourself a lot of money, and get to a Specialist.
>Good luck to you!
>Robin
>
>At Thu, 20 Sep 2007, Christina wrote:
>>I'm hoping a doctor will respond to this!
>>I went to my OB/GYN Tuesday for the results of my ultrasound/blood test.
>>I was diagnosed last year with endometriosis (he never told me what
>>stage, but I'm assuming mild since he said he removed a small amount of
>>adhesions) and my pelvic pain has returned and I'm having very
>>infrequent periods. He sent me for an ultrasound which came back
>>"Normal Pelvic ultrasound." He also sent me for routine blood work which
>>also included a CA-125 test. When he was going over the results with
>>me, he had circled the CA-125 result (8.4). He mentioned this was a
>>little high so it made him think the endometriosis had returned. He
>>told me to wait a month and then call back if I wasn't better for him to
>>schedule another lap surgery. (what.. a month??)
>>I've tried to research if 8.4 is a high number or not, but I can't find
>>anything that says that. Everything I've read says that anything below
>>35 is normal. So I have to wonder if he even knows what he's talking
>>about? Do I want to trust him to perform another lap on me??
>>I've even gone so far as to look in medical journals about it. (you
>>see.. cancer runs in my family really bad so CA-125 scares me..). I
>>work in a company that provides publishing services for medical
>>journals, so I have access to them all, but I can't understand all that
>>medical language enough to know what I'm reading.
>>Thanks for reading my long post! So tired of the pain...
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