Re: ENDOMETRIOSIS: CA-125 in Endometriosis, 8.4?
From: Robin (anonymous@obgyn.net)
Thu, 20 Sep 2007 16:40:25 -0500 (CDT)
Christina,
Hopefully Dr. Lyons will answer this question as he is one of the well
known Endo Specialists in the country. Having said that, allow me to
add to hopefully calm your fears a bit.
Endo is very well known to cause a rise in the CA125. My Hematologist,
also an oncologist said he does not do a CA125 on any woman unless she
already has a cancer Dx. Even stress can raise the number.
Your best bet is to seek out an Endo Specialist (Tom Lyons, Robert
Albee, Ken Sinervo, David Redwine are just a few that come to mind...Dr.
Albee is my Dr. and has been for well over 9 years) and have a thorough
surgery. Many surgeons use ablation and just get the first layer or two
of Endo, leaving endo behind. So, you might get a little relief,
however, it is only temporary. Do yourself a favor and, in the long
run, save yourself a lot of money, and get to a Specialist.
Good luck to you!
--
Robin
At Thu, 20 Sep 2007, Christina wrote:
>
>I'm hoping a doctor will respond to this!
>
>I went to my OB/GYN Tuesday for the results of my ultrasound/blood test.
>I was diagnosed last year with endometriosis (he never told me what
>stage, but I'm assuming mild since he said he removed a small amount of
>adhesions) and my pelvic pain has returned and I'm having very
>infrequent periods. He sent me for an ultrasound which came back
>"Normal Pelvic ultrasound." He also sent me for routine blood work which
>also included a CA-125 test. When he was going over the results with
>me, he had circled the CA-125 result (8.4). He mentioned this was a
>little high so it made him think the endometriosis had returned. He
>told me to wait a month and then call back if I wasn't better for him to
>schedule another lap surgery. (what.. a month??)
>
>I've tried to research if 8.4 is a high number or not, but I can't find
>anything that says that. Everything I've read says that anything below
>35 is normal. So I have to wonder if he even knows what he's talking
>about? Do I want to trust him to perform another lap on me??
>
>I've even gone so far as to look in medical journals about it. (you
>see.. cancer runs in my family really bad so CA-125 scares me..). I
>work in a company that provides publishing services for medical
>journals, so I have access to them all, but I can't understand all that
>medical language enough to know what I'm reading.
>
>Thanks for reading my long post!
>
>--
>So tired of the pain...
>
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