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GYNECOLOGIC: Aggressive Angiomyxoma

From: Anita (anonymous@obgyn.net)
Sat, 4 Aug 2007 05:50:28 -0500 (CDT)


I would love to speak to someone who has this rare tumour. This tumour is still classed as benign despite it having metastasized twice and killed 2 women! There have been only about 100 - 150 cases in the world apparantly and i am desperate to speak to anyone who has had the experience. thanks

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I have just had a vulval tumour removed and it was difficult to distinguish it from the angiomyfibroblastoma so an MRI scan is recommended.  I wish i knew which one it was as it seems the surgeon did not manage to remove it all and i am now worried that if it's the AAA then I should be reviewed quickly





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Last Updated: Tue Sep 2 06:40:31 2008

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