WOMENS-HEALTH Messages for July, 2003: Re: 2ND entry: Question for all readers and doctors regarding Interstitial cystitis

Re: 2ND entry: Question for all readers and doctors regarding Interstitial cystitis

From: holly (anonymous@obgyn.net)
Mon, 14 Jul 2003 20:14:52 -0500 (CDT)

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In reply to: nikoo: "2ND entry: Question for all readers and doctors regarding Interstitial cystitis"

i was just diagnosed with IC last week. i'm now taking elmiron to rebuild the bladder lining. also, my doc gave me a list of foods that i should avoid because of the way they irritate the bladder. i'm trying really hard to modify my diet so that i won't have to do med treatment forever. they gave me a website for ichelp.org or something like that. i can't remember what it is. but go into a search engine and look for it. it has the whole thing about diet.

also, are you being treated by a urologist? try to find one who is qualified to treat IC. i had a cystoscopy under general anesthesia, and they found lots of inflammation and stuff. i also had a urodynamics test. the results were that i couldn't hold even 2 ounces without pain. i know she wants to do more stuff, but i don't know what it is yet.

(((hugs))) ic sucks. and the diet plan sucks too. but i'd rather watch what i eat than be in pain all the time.

At Sun, 13 Jul 2003, nikoo wrote: >
>Hello,
>I am 26 and have had symptoms of urinary frequency, and vaginal/vulvar/
>urethral inflammation for over a month now.
>The doctor did cystoscopy and hydrodistension on my bladder...he said it
>looks normal. But it's possible I have interstitial cystitis b/c not
>ALL patients show hemorrages/ulcers on the bladder, so I am told.
>
>My question is...is there anyone who knows of treatments that are more
>effective than other? I have heard of patients being completely symptom
>free after treatment...but I don't know what they were taking/doing. IF
>anyone has had success with IC symptoms....either with prescribed
>medicine or herbal/natural supplements or vitamins please let me know. I
>would appreciate it VERY much.
>Thanks a lot,
>nikoo

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In reply to: nikoo: "2ND entry: Question for all readers and doctors regarding Interstitial cystitis"

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