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Re: healing from laparotomy-two yearsFrom: adria (anonymous@obgyn.net)Wed, 30 Apr 2003 09:14:11 -0500 (CDT)
MRKH syndrome is otherwise known as uterine vaginal agenesis. It is congenital absence of all or most of the uterus, it can involve the absence of all or most of the vaginal passage also. There can be spinal problems associated with it and renal problems and missing organs in that system. The patient usually finds out around the age they are suppose to have a period. When the doctor does the pelvic he usually finds a vaginal dimple(extremely short or nonexistent passage)Our chromosomes are normal. We find out we will never have a period, won't be able to have children naturally and have to go through treatment to have sexual relation. That involves plastic dilators that stretch vaginal tissue to the appropriate length and reasonable diameter to have relations or surgical treatment such as skin grafts or they can use amnion tissue or intestinal tissue to create a functional vaginal passage It is rare . Patients are or use to not be educated to the full extent or extent of this syndrome when they are diagnosed. They just happen upon websites and all of sudden they are in the company of people that also have the condition. I applaud your question. When someone says I have never had a period, it is true. Some patients are looked at strangely by medical personel. Their cramping which involves having pieces of non functional uterus that do produce menstrual blood are told no that it isn't a period and sometimes it is pushed aside.
-- ADria
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