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Re: Vulvar lesions

From: Shelly (anonymous@obgyn.net)
Thu, 6 Mar 2003 18:45:58 -0600 (CST)


>
>>This is my first time on this forum but I don't know where else to go
>>and thought someone might have had a similar experience. My 18 year old
>>daughter has been experiencing occasional sores on her labia since the
>>age of 10. The first time they appeared we were on vacation and she had
>>6-8 canker sores in her mouth and what appeared to be 8-10 blister-like
>>bumps on her labia. They didn't open and were gone by the time we
>>returned home two days later. No reoccurence until she started her
>>periods at the age of 12 1/2. Since that time she has had a recurring
>>problem with these sores, sometimes as many as 8 -10 in one year. Our
>>gynecologist has tested her for everything under the sun, everything
>>tests negative. She always has a canker sore in her mouth when she gets
>>these sores, and usually is having her period or just finished her
>>period. Gynec. sent us to infectious disease specialist who diagnosed
>>Behcet's syndrome after a 5 minute look at her records. WE then went to
>>rheumatologist, and opthalmologist to look into Behcet's and it was
>>ruled out. In the meantime, no one has come up with any thing to manage
>>the pain; painkillers don't touch it, Vicodin, Darvocet,
>>anti-inflammatory--nothing. Sometimes she has as many as 6 at one time
>>and has to stay in bed for a week or more until they start to dry up.
>>She is a freshman in college and is getting very depressed because no
>>one can give her any suggestions--we're trying an acupuncturist for pain
>>management because we don't know where else to turn - our gynecologist
>>has been wonderful but she and her partners are totally baffled---does
>>anyone have any suggestions??
>>
>>--
>>Shelly
>>
>Have Herpes cultures been done when the lesions were present? This
>sounds like a classic case. I suspect that they have with all those
>high powered consults, but then again every once and a while we overlook
>the obvious.
>

Yes, numerous cultures have been done when lesions were present, always negative. Any other suggestions??

--
Shelly



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