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Re: Vulvar lesionsFrom: Shelly (anonymous@obgyn.net)Thu, 6 Mar 2003 18:45:58 -0600 (CST)
> >>This is my first time on this forum but I don't know where else to go >>and thought someone might have had a similar experience. My 18 year old >>daughter has been experiencing occasional sores on her labia since the >>age of 10. The first time they appeared we were on vacation and she had >>6-8 canker sores in her mouth and what appeared to be 8-10 blister-like >>bumps on her labia. They didn't open and were gone by the time we >>returned home two days later. No reoccurence until she started her >>periods at the age of 12 1/2. Since that time she has had a recurring >>problem with these sores, sometimes as many as 8 -10 in one year. Our >>gynecologist has tested her for everything under the sun, everything >>tests negative. She always has a canker sore in her mouth when she gets >>these sores, and usually is having her period or just finished her >>period. Gynec. sent us to infectious disease specialist who diagnosed >>Behcet's syndrome after a 5 minute look at her records. WE then went to >>rheumatologist, and opthalmologist to look into Behcet's and it was >>ruled out. In the meantime, no one has come up with any thing to manage >>the pain; painkillers don't touch it, Vicodin, Darvocet, >>anti-inflammatory--nothing. Sometimes she has as many as 6 at one time >>and has to stay in bed for a week or more until they start to dry up. >>She is a freshman in college and is getting very depressed because no >>one can give her any suggestions--we're trying an acupuncturist for pain >>management because we don't know where else to turn - our gynecologist >>has been wonderful but she and her partners are totally baffled---does >>anyone have any suggestions?? >> >>-- >>Shelly >> >Have Herpes cultures been done when the lesions were present? This >sounds like a classic case. I suspect that they have with all those >high powered consults, but then again every once and a while we overlook >the obvious. > Yes, numerous cultures have been done when lesions were present, always negative. Any other suggestions??
-- Shelly
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