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Re: ovarian remnant syndromeFrom: D.N. (anonymous@obgyn.net)Fri, 22 Nov 2002 09:47:28 -0600 (CST)
Hi, I am not a doc, but I have ovarian remnant syndrome too. Did you have endo at the time of your hysterectomy? A hyst is not a cure for endo and it can come back- it did for me. I had a hyst and one ovary removed. The right ovary was fine at that time. Less than a year and a half later, my right ovary had an endometrioma and adhesions and had to be removed. However, they did not get it all out because of everything covering the ovary and distorting the anatomy. Plus they were afraid of damaging my ureter because the ovary was adhered to it. I found out 4 months after the surgery they didn't get it all out. They can't see endo via ultrasound. They might suspect an endometrioma because of the way it looks, but that is about it. Endo has to be directly viewed during surgery. I have heard that DES might be related to endo, but I was not exposed to endo. My youngest sister was, but she doesn't have endo. Endo I think plays a part in ORS because of it distorting the anatomy and making it more difficult to remove the ovary intact. I have tried progesterone cream that was prescribed by my doc and compounded in a pharmacy. I am not sure that it helped much (mostly with mood, not with pain). It was really a last resort because I had already tried continous birth control pills. I don't know if you can use them, but it might help with your pain. It helped me, but I had to stop because of an increase in migraine headaches. It would be better to medically manage ORS instead of further surgery, if possible, because as you already know, surgery does not always get rid of ORS. Hope this helps. Write back if you have more questions. Best wishes, D.N.
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