Re: TRIMETHYLAMINURIA...FISH ODOR SYNDROME
From: Abby (anonymous@obgyn.net)
Mon, 6 May 2002 12:57:12 -0500 (CDT)
At Mon, 6 May 2002, anonymous@obgyn.net wrote:
>Yes, I have heard of this. It is a genetic, metabolic disorder. I think you would be better off seeing a specialist in metabolic disorders, instead of a gynecologist or dermatologist. The nearest medical school could have some suggestions. I hope this helps.
>I HAVE SUFFERED FROM THIS SYNDROME, IT SEEMS ALL OF MY LIFE....i used to put
>CLOROX IN THE TUB, every day, when I took a bath....when I told the gyn.,
>she said to discontinue this practice as it would ruin the tissues....douche
>reguarlary....told the problem to the dermatologist and he said to dry good
>and use a hair dryer, if necessary....I do this.....one doctor prescrbed K
>Flex......One doctor said to use BAKING SODA.....THIS FOUL ODOR COMES FROM
>THE VAGINAL AREA...I HAVE ELIMINATED FISH, RED MEAT, NUTS AND EGGS FROM MY
>DIET BECAUSE I READ THAT THIS MIGHT HELP...NOTHING HELPS ....AND IT IS NOT IN
>MY MIND AS FAMILY HAS NOTICED IT....SURE MANY OTHERS HAVE ALSO NOTICED IT BUT
>WERE TOO POLITE TO MENTION THIS....ALSO, HAVE TAKEN ESTROGEN...I NOW PUT
>DEODORANT ON THIS AREA, PLUS LOTION AND BABY POWDER AND WEAR CARESS FRAGRANCE
>PADS IN MY UNDERWEAR AND PACK THE PAD WITH BAKING SODA......I AM SURE YOU
>HAVE NEVER HEARD OF SUCH A THING AND BELIEVE ME I AM NOT PUTTING YOU ON...ARE
>SWEAT GLANDS IN THIS AREA EVER REMOVED...DO YOU KNOW OF ANYTHING THAT I CAN
>DO.....THANK YOU
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