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Re: Desperate for more info on diagnosisFrom: Melissa (anonymous@obgyn.net)Sun, 18 Feb 2001 00:18:08 -0600 (CST)
>Hello, > >I've been diagnosed with Adult Onset Adrenal Hyperplasia instead of what >I thought I had...PCOS. >I have not been able to find any information online that explains this >in non-doctor terms! > >I would appreciate any and all help regarding this in order for me to >better understand this. > >Thank you very much. Hey there! I also have Late Onset Congenital Adrenal Hyperplasia. I just wanted to let you know that I started an email list well over a year ago for women with this disorder. We now have about 150 members. We'd love to have you with us! Unfortunately, LOCAH is a disorder that so often goes undiagnosed or is misdiagnosed as PCOS. Your experience is so common. Women who experience chronic acne andabnormal hair growth are often told that it's normal to experience such things or that they have to just live with it. I went undiagnosed for nearly 10 years. Very frustrating! But you are certainly not alone, considering 1 in every 100 to 1000 people have this disorder. Please visit the follwing link to read more about the CAHsisters email group: http://groups.yahoo.com/group/CAHsisters Here are some other links that you may find helpful! http://www.geocities.com/HotSprings/3532 http://www.aafp.org/afp/990301ap/1190.html Take care!
-- Melissa
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