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Re: What if.........
From: allison (anonymous@obgyn.net)
Wed, 15 Nov 2000 18:56:19 -0600 (CST)
Definetly hang in there and get a 2nd opinion, or 3rd or 4th. I have
something like a uterus didelphus (split uterus with 2 cervix) which has
confused many an OBGYN and in turn they treat me like a guinea pig. At
17 (now 25) I started looking for an OBGYN who could explain the
condition and its implications (they all looked at me and thought
"blonde teenage bimbo" and assumed I was just worried about BC)...I just
found him 2 weeks ago. In the meantime I saw moron after moron. Along
the way I even lost an ovary and a fallopian tube to an ectopic
pregnancy. The doctor let me bleed for 2 months saying the preg might
"take care of itself". When I complained of severe pain she gave me
pain killers which masked the fact that I was hemmohraging (sp) and I
nearly bled to death. The doctor was too passive and so was I. Keep
searching until you find the doctor you need and deserve. There ARE
fantastic ones out there! Claudia is right, tooth and nail is worth it
for someone you trust.
Good luck, I know you'll find him/her.
Keep us posted!
At Wed, 15 Nov 2000, Tina wrote:
>
>At Wed, 15 Nov 2000, Claudia Twisdale RN wrote:
>>
>>Sending a big hug your way! Hang in there!
>>> Thanks I needed that. I talked to my doctor's office and I see him tomorrow at 10 am California time. I have a whole list of crap to tell him. Before I called the doctor's office, my husband called the insurance company about a referral to Loma Linda University OB/GYN department to see one of the ob/gyns there. They said to talk to my doctor and get a referral there. Like I said I see him tomorrow. Even if I have to go by myself, since my husband is working out of town. Will let you know what the doctor says tomorrow.
>
>>At Wed, 15 Nov 2000, Tina wrote:
>>>
>>>At Wed, 15 Nov 2000, Claudia Twisdale RN wrote:
>>>>
>>>>yes, second opinion! I had to fight tooth and nail last year with my
>>>>insurance company (not my gyn, as he was on my side) to get my TAH and
>>>>bladder repair. Worth it? YES!
>>>>
>>>>At Wed, 15 Nov 2000, Tina wrote:
>>>>> Okay, Just got back from ob/gyn visit. What a joke. He basically told me that the pain that I have been experiencing in my right hip (for 12 years) is basically a pinched nerve and not because of something wrong with my uterus! He made me feel like he thought the pains were all in my head. He didn't even look at the ultrasound film!!!! I looked at it and they have marked where the fibroids are! I can tell that, there are four different areas that are marked. So I am going to call my regular doctor when his office opens back up after lunch and demand a second opinion. I have already spoken with the insurance company. I am so fed up with feeling like sh**. I can't take my 6 year old son to the park to play, it hurts. I can't take my daughters shopping for very long, it hurts. My husband doesn't even know this next part, but it even hurts after fooling around. I have never told him that part, it would just make him feel bad. I have had it to the point that I want to
>
>>f
>>>ly back to Missouri and see my old doctors there. And I cannot afford the airfair!. UUUUUGGGGGGGGGGGHHHHHHHHHH. Will inform all after I speak with my doctor
>>>Thanks
>>>>>At Wed, 15 Nov 2000, Claudia Twisdale RN wrote:
>>>>>>
>>>>>>You certainly can discuss your wishes with your gyn. Unfortunately in
>>>>>>this day of HMOs insurance companies seem to dictate what can and can
>>>>>>not be done. Please talk to your gyn. If hysterectomy is truly the
>>>>>>best option, then I hope It is done
>>>>>>>
>>>>>> But would it be a good idea that if, he doesn't agree with my wishes, that I get a second opinion? Or a third, or a fourth until, I get them to listen to me?
>>>>>
>>>>>--
>>>>>Tina
>>>>>
>>>>>>At Tue, 14 Nov 2000, Tina wrote:
>>>>>>>
>>>>>>>Here is the question of all questions......What if, at my doctor's appt.
>>>>>>>tomorrow, he recommends the medication treatment for my
>>>>>>>fibroids/adenomyosis, and I don't choose to accept his recommendation?
>>>>>>>
>>>>>>>My husband and I have talked at great length about this. You see, after
>>>>>>>my son was born 6 years ago, my hormones were out of wack and they (the
>>>>>>>doctors) tried every BCP, including Depo Prevera, to get the bleeding
>>>>>>>and periods in control. Nothing worked. Finally, after 9 months of
>>>>>>>severe pain and excessive bleeding, the doctor ordered an internal
>>>>>>>vaginal ultrasound. A fluid filled cyst was found just under my pelvic
>>>>>>>bone and it was decided that a laparoscopy/hysterescopy was ordered. Not
>>>>>>>only did they find the cyst and drain it, but also found that my
>>>>>>>fallopian tubes on both sides had adhered to the inside of my abdomonial
>>>>>>>wall. They fixed them and the pain stopped and the bleeding went back
>>>>>>>to normal. For a while. But every month when my cycle is due, I get
>>>>>>>the sharp pains in my right hip down my leg to just below my right knee.
>>>>>>>The cramps are HORRIBLE!
>>>>>>>
>>>>>>>Whenever I complained about these pains to my doctor, he just assumed
>>>>>>>that when I was pregnant with my daughter (12 years ago) she pinched my
>>>>>>>sciatic nerve. I have been suffering from these pains since then. I
>>>>>>>WANT THEM TO STOP PERMANENTLY! Okay, here is the end of the question,
>>>>>>>there was a lot of filler I know, and I am sorry. Can I go against my
>>>>>>>doctor's recommendations and request that he do a hysterectomy instead?
>>>>>>>These pains make it where I have trouble walking for 2 months out of
>>>>>>>every month. I snap at my kids, I cry, I run up the gas bill for the
>>>>>>>hot water, and I end up sleeping on the heating pad just to get some
>>>>>>>relief.
>>>>>>>
>>>>>>>Please advise.
>>>>>>>
>>>>>>>--
>>>>>>>Tina
>>>>>>>
>>>>>--
>>>>>Tina
>>>>>
>>>--
>>>Tina
>>>
>--
>Tina
>
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