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Re: Dr Marchbein-Peggy(Dr.von Almen)From: Peggy (anonymous@obgyn.net)Sun, 3 Sep 2000 09:53:43 -0500 (CDT)
At Sun, 3 Sep 2000, William F. von Almen, II, MD, FACOG wrote: > >At Sun, 3 Sep 2000, Peggy wrote: >> >>My >>levels are as follows >> FSH 2/00 -36.9 >> 7/00 17 >> 8/00 4.9 >> Estradiol 2/00 57 >> 7/00 42 >> 8/00 67 >>>If not ovarian remnant what would cause these levels ?Remembering that I have no ovaries! >> >>Hi Peggy: >> >>As you know, I have been following your posts. I keep wondering if a >>neurological reason for your pain has been thoroughly ruled out. Just >>because you have endo present it does not mean that the endo is >>necessarily causing your pain. I read where you wrote that two weeks on >>HRT increased your pain. Although I agree this does make it look like >>there is a connection with the endo, 2 weeks is really a very short time >>and it could be a coincidence that period. It may have been due to some >>other reason that was occuring at the time you were on HRT. I would >>think a longer period of taking HRT would be necessary before coming to >>the conclusion that HRT increased your pain. >>Why don't you try one of the drugs used for neurological pain, such as a >>low dose tricyclic antidepressant or neurontin? I have no experience >>with the latter, but my RLQ disappeared for the most part after a few >>weeks of a low dose of nortryptilene. I was told that using >>nortryptilene would only control my pain, not cure it, but when I went >>off the drug, the pain did not return except for a few reminders now and >>then. It seems to me this would be easier to try than going across the >>country for a treatment such as the aromatase inhibitors etc. This is >>just an idea but it worked for me. I also had a few spots of endo in >>the pelvis and I am now on ERT and no increase in pain. >> >>Chris S. >> >>Chris, >> >>My main concern with this is that I have not had a long enough estrogen >>"FREE" period to have the endometriosis "DIE" off. This is why I >>believe that my pain is still endo related.Also it is not just the LLQ >>pain anymore, I am having pain in the LRQ that radiates down into the >>vagina and rectum,I contribute this pain to the endo that is in the cul >>de sac? Medically I should be post menopause, Why I would only of had >>menopause symptoms for a very brief period of time after I had the >>remaining ovary out and for a very brief period while doing the Lupron >>is quite puzzling to me, Its like my the endo is saying HEY I NEED >>ESTROGEN to stay alive and I start producing more estrogen. My Drs. >>have been over this with me and talked about pain pathways being >>established and have talked about this medication, But The other thing >>that I question is why would the pain increase with any kind of >>activity ? Why would the pain increase with bowel movements and >>urination? And yes I have had a couple colonoscopies and I have had a >>cystoscopy and I have had CT Scans and I have had an MRI, ALL have been >>negetive. Which makes me have to think that it is endo that is causing >>my pain. I just won't except that there isn't anything there that isn't >>causing the pain.It is very frustrating but I won't give up on finding >>the cause.Thanks for your suggestions I appreciate anybodies help >> >>"FRIENDS THAT STICK TOGETHER" Peggy K. >> >>What lies behind us and what lies before us are tiny matters, compared >>to what lies within us. >> >>-Ralph Waldo Emerson (1803-1882) >>>Peggy >>> >>>I usually wait ~3 mos before starting estrogen in a patient with known >>>endometriosis. Hope this helps. >> >>Dr. von. Almen, >> >>I have not been on any estrogen replacement since 12/99 ,And I actually >>was only on it for 2 weeks in December .When my levels were last checked >>8/00 they were FSH 4.9 and estradiol 67 .What other than an ovarian >>remnant would cause me to have levels like this ? I have no ovaries and >>even while doing Lupron therepy into the third injection my Dr. checked >>my levels and they were FSH 17 and Estradiol 42.Peggy >>> >Peggy > >With those numbers, it certainly sounds like ORS. These can be devils >to diagnose and treat-like looking for needles in haystacks. Perhaps a >longer suppression with maybe some addback therapy? Good Luck >
Dr. von Almen,
Thank you for your responce,One question I have is if it is suppressed
longer and the pain gets better what are the chances for reoccurrance ?I
tried the Lupron for 4 months.Peggy
>
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