WOMENS-HEALTH Messages for August, 2000: Born without a Uterus

Born without a Uterus

From: Carrie (anonymous@obgyn.net)
Fri, 4 Aug 2000 00:47:47 -0500 (CDT)

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Reply: R. Daniel Braun, MD: "Re: Born without a Uterus"

Hi,

My name is Carrie and was diagnosed with Rokitansky-Kuster-Hauser Syndrome when I was 18.

I am now 28 and married.

I have spent the past 10 years denying the fact that I can't have children.

I have had Kidney tests and have no abnormalities. However, the doctors I have been to (I thought) had covered all bases and after finding the Women's Health Forum, you mentioned testes being present in the abdominal cavity. I haven't heard of the that before. I had an MRI before I was diagnosed. My question is, are testes always present in women diagnosed with this? Did they miss something? My doctor at the time (and he was a specialist at a clinic in Minneapolis) didn't seem to know much about the syndrome. ( It took 2 years to diagnose) e.g. He kept asking me how often I shaved????? And was surprised I had such well developed breasts...I thought they had all the answers. What an impressionable age.

My regular practitioners didn't seem to know much.

I feel now like I don't really know what is going on with my reproductive organs. And I feel lost.

I live in Salt Lake City, Utah and would like to find someone to help me. ( I just moved here with my husband 1 month ago)

We are planning on adopting, however I would love to know what kind of chance we have at other resources. I was adopted myself and would love to have a biological child and won't rule it out until I know it's not possible. But most importantly, am I O.K.? or do I have health risks? Things I should be worried about?

Thank you for your time,

-- Carrie Clark

ps. I have had estrogen testing and the two times I have done it, it looks like I am fairly stable with functioning ovaries. Also, my last doctor informed me that I have an inverted vagina. Is that common? I would love to remove the tissue from that external area.

Next message: Debbie: "'Dysfunctional' Ovaries?"
Previous message: Kristy: "Re: Should hubby be treated for BV and yeast?"
Next in thread: R. Daniel Braun, MD: "Re: Born without a Uterus"
Reply: R. Daniel Braun, MD: "Re: Born without a Uterus"

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