Informal Case:

From: elizabeth dorney (dorney365@msn.com)
Wed Jul 23 14:51:24 2003


I don't know if this is the correct place to ask questions, but I guess it doesn't hurt. My child has been diagnosed as having "Acrania". Since this is such a rare anomaly my Dr's do not have too many answers to my questions. I was just wondering from the article I read is "Exencephaly" a synonym for acrania or does acrania sometimes deteriorate into exencephaly. If the child is diagnosed as having acrania does the higher level of Mslp ( I think that that is what it is - the level in the quad screeening that diagnosed something wrong) affect the fetus while in womb? Also what causes death in the delivery process of having a child diagnosed with Acrania? Is it the stress of vaginal delivery, gravity crushes the brain? If you have any answers to these questions or could direct me to someone who may have some insight on these questions that would be wonderful. I'm at a loss here b/c this is so rare and I want to carry to term if my baby permits, but I don't want the baby to be in pain. Once again if you have any insights that would be wonderful. Thanks again. Elizabeth Dorney dorney365@msn.com



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