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Re: Am I supposed to ask questions about baby?From: Rachael (anonymous@obgyn.net)Thu, 8 Jul 1999 17:11:47 -0500 (CDT)
At Thu, 8 Jul 1999, JoAnn wrote: > >At Wed, 07 Jul 1999, Cindy wrote: >> >>Isn't it common to want to know all about the baby? If I >shouldn't be asking questions about my child then please >give me your opinion. > >As a debate is beginning to develop regarding "what ifs" and your right >to knowledge, I've decided to throw my two cents worth into the ring. > >As someone who is 14 weeks pregnant with my first subsequent pregnancy >after a loss (my son Elliot was born still on January 5), I am walking >and breathing "what ifs" to a new and profound sense of awareness. I've >already had four appointments and have a growing pile of articles >stacking up on my dining room table of everything I can read, print off >from the internet, and copy regarding possible "what ifs". My poor MIL >is a nurse and everytime she mentions something I can recite to her >statistics and research suggesting possible mis-information. (I know >I'm driving her crazy!) > >During this pregnancy I've had horrible itching since about the >sixth/seventh week. It gets so bad that I actually have to break the >skin for relief. At my 12 week appointment my doctor noticed all of the >scratch marks on my body (mostly legs and arms). She than described to >me a pregnancy induced condition where bile salts can collect because >your liver isn't functioning right. (Having already done some research >on itching in pregnancy I'm thinking to myself that she is describing >obsetric cholestis and this baby is going to die too.) > >As we talked some more about the itching she described possible >immediate remedies (oatmeal baths and calamine lotion, which by the way, >none of my research had suggested) and if the itching does continue or >get worse later on we could do a round of steriods. Never once does she >mention that this condition has been linked to stillbirths and can be >fatal to baby if left untreated. And you know what, I am so thankful >that she never did. While, yes, I knew that this was a possible outcome >in severe cases, I'm very grateful that she used her better judgement in >not going down that "what if" path with me. At this point in my life , >the last thing I need my OB to tell me is that this baby could die too. > >As I've done other research on the tests run on me after Elliot's death, >I've learned of multiple other issues that I'm glad my doctor was wise >in not sharing with me. The possible outcomes, the "what ifs", are not >always the best to know. If I had known that hypothyroidism can be a >contributing factor to infertility a few weeks after Elliot had died, I >would have lived in fear that I'd never be able to get pregnant again. >As it turned out for us, one time was all it took! > >Cindy, I would say to you do ask questions, be informed, seek out >alternative forms of information, (i.e., the internet, medical journals, >etc) always have a balance by which to judge from, a baseline. As a >patient, I think what would be more concerning to me is how it appears >your doctors office treated you. Definitely, try to approach your >doctor about this kind-of poor treatment. Remember you are the >customer! If they are caring and professional, they will have your best >interests at heart. This goes as well with them sharing or not sharing >information with you. Sometimes it could simply be that they don't know >until they've studied all the tests. Even then they may not know (as >with my son). > >Keep us posted as to the outcome of the situation. I'd be very curious >to know how this is handled. I wish you the best with your baby and >hope that all of your dreams come true. > >JoAnn > >P.S. BTW Noelle, what are you still doing here? It's July 8 where is >Baby Ellie?! > >-- >Mommy to Elliot James s/b 1/5/99 & Baby #2 due 1/1/00 > In my opinion, a good doctor "rises to the occasion" so to speak; giving you just as much information about your current issue as you need to make an informed, competent decision. Remember, our OBs have seen almost everything possible in a pregnancy, especially those who have been around a while. How would it make us feel if they gave us every scenario they had ever seen? I thought through pregnancy my doctor was "rushed" and brief, but boy I'll tell you when I started having problems, he was right there, taking all the time he needed, postponing appointments, to make sure we were taken care of. He gave me the info I needed regarding my condition (PIH), but no more. I'm very glad he didn't give me a rundown on HELLP syndrome. When I look back, I realize he did a wonderful job of giving me the information I needed to make sensible, informed decisions. We must go with the flow, because pregnancy and childbirth are very unpredictable things. I think a good doctor knows this and responds accordingly. I am too wondering about little Ellie... I can't believe it's her time already! :o)
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