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Re: omphalocele

From: mary (anonymous@obgyn.net)
Mon, 26 Apr 1999 20:04:30 -0500


> We just found out after a high AFP and a level 2 ultrasound that our 17+
> week fetus has an omphalocele. I had an amnio the same day and I will
> have to wait 2 weeks for the results.
> I was not told how large the omphalocele was, but I was told that all
> other organs (including the heart) appeared normal.
> I will have to wait for my amnio results to find out if there are
> chromosomol abnormalities but I would like to know the success rate of
> surgery for omphalocele?

This depends on the size fo the omphalocele. With a very large omphalocele, the intestines (and whatever other organs are outside the abdomen) need to be moved into the abdomen gradually - over a period of time.

> Also, Will the amnio tell us 100% if there are other problems? I have an
> appointment with a perinatologists in Boston in 2 weeks. Thank you.

An amnio will not detect all anomalies. My two babies had a multitude of anomalies, including omphaloceles, and the amnio on the second baby was normal (didn't have an amnio with the first but I would presume the same results). However, in our case, all the anomalies were detected on ultrasound.....and they were *real* obvious.

Good luck to you and please let us know how things go. :)

--
Mary Shoup
Pregnancy & Birth Coordinator
mary.shoup@obgyn.net





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