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Re: Severly short humerus and femur lengths??? TO HEATHER

From: Valerie (anonymous@obgyn.net)
Wed, 30 Apr 2003 13:49:29 -0500 (CDT)


Heather,

We're right about the same age.... how funny because I don't see alot of other well spoken younger gals on the board (many over 30). Please do feel free to email me, I am not an MD, but I have more experience with dwarfism than the "average bear" and more than many MD's (and I have always hated it that docs treat the health but often do not regard their responsibility for the mental health) FYI, for the most common form of dwarfism (achondroplasia) 80% of "achons" are born to parents of average size with no known family history of dwarfism, it is just a genetically random happening that approxiamately 1 in 17,000 babies will be an achondroplastic dwarf. (I am glad stating my honest opinion sat well with you, one other person in your situation once blasted me hard-core! But, honestly, short or tall fat or skinny s/he will still be your perfect little baby... I got married at 19 and tried for about 4 years to conceive because I have known fertility issues and my husband and I were even considering adopting a foreign-born dwarf child as other countries are not all as enlightened as the ours with regard to people with disabilities.) Email me at thatsmy2cents@yahoo.com

--
Valerie

At Tue, 29 Apr 2003, Heather wrote: > >Valerie, >Hi, I really would like to email you, but I don't see an email address >for you on here!! The doc said that it didn't seem like down's to her >either, although she couldn't rule it out. They are sending me for a >level II since the measurements are seeming to be for every 4 weeks that >pass, long bones grow 2 weeks worth...in my case. She also said they >would probably do an amnio. I am only 23 and have no family history at >all...it kind of scares me the prospect of this. Oh, I also forgot to >mention that the U/s did show a four chambered heart as well. Thank you >for your kind words! > >-- >Heather >




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