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Re: ICSI-Docs please - to MelissaFrom: Abbey (anonymous@obgyn.net)Wed, 8 Jan 2003 10:48:05 -0600 (CST)
Melissa, I think you should consider getting genetically tested. Most parents which have CF children have no family history of it at all. I am very confused about your saying that the dr said he has high odds of having a child with CF though. That doesn't make any sense unless you are a carrier. If one parent has CF and the other parent is a non-carrier, then it is 100% that the child will be a CF carrier, but will NOT have CF. You MUST get the genes from both parents to get CF, not just from one parent. However, if one parent has CF and the other parent is a carrier, then there is a 50% chance of the child will have CF and 50% chance of the child being a carrier. That is why I said you should be tested. If you are not a carrier, the whole CF issue is moot because you will know for a fact that your child will NEVER have CF (even though they may be a carrier of it). Talk to a gene specialist about this. I am pretty sure that this is correct. When my sister was pregnant with their 2nd child (their first child has CF), she had an amnio done. They compared the genes of the older sibling and both parents to the baby and were able to determine that the baby is a carrier, but does not have CF. That was 12 years ago so I am sure even more advanced testing is now available. One other thing, you are right about CF being a terrible disease, but major advancements have been made in treatment. When my neice was born (she is now 16), the dr's told my sister that only about 50% of the kids with CF actually reached adulthood. However, with the advancement of new antibiotics and treatments, the average life expectancy now is somewhere in the 30's. So, even though you certainly wouldn't want to purposefully create a child with CF, it is not the end of the world either. My neice lives a pretty normal teenage existence, goes to school, hangs out at the mall, is in the process of getting her driver's license, goes to sleepovers, loves to talk on the phone and is beginning to look at college possibilites. Considering everything, there are certainly worse diseases to have.
-- Abbey
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