PREGNANCY-BIRTH Messages for March, 2001: Re: Pena-Shokeir Syndrome

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Re: Pena-Shokeir Syndrome

From: Lynn D. Montgomery, MD (anonymous@obgyn.net)
Wed, 14 Mar 2001 13:04:04 -0600 (CST)

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In reply to: Andrea: "Pena-Shokeir Syndrome"

At Wed, 14 Mar 2001, Andrea wrote: >
>I am from the UK and am 29 weeks pregnant with my second child. My baby
>girl has just been diagnosed as having a form of arthogryposis such as
>Pena-Shokeir syndrome (polyhydramnios, fixed limbs, scalp oedema,
>micrognathia, pleural effusion). I have been advised that my options
>are a termination with an injection into the baby's heart or waiting to
>go into labour naturally and letting the baby die without medical
>intervention. Obviously both options are pretty unacceptable. I have
>been told that an induction will not be performed.
>
>As my first child is perfectly healthy, can anybody give me some advice
>on whether the diagnosis sounds accurate and if so what will happen with
>the baby at birth - will she die immediately or will it take days?
>
>I would be grateful for some urgent replies!

I am very sorry to hear of your recent discovery. Based on your description, the diagnosis sounds consistent. The duration of life is variable following delivery. I will pray for you in making this decision... Lynn

--
Lynn D. Montgomery, MD
Director, Maternal-Fetal Medicine
Rocky Mountain Perinatal Center
Missoula, Montana

**Note:  Opinions expressed here are for educational purposes only and, as such, do not constitute a physician-patient relationship.  This information is not intended to supplant the need for you to consult with your physician prior to choosing therapeutic options and/or interventions.

**Private e-mails cannot be entertained due to time constraints, consequently no private e-mails will receive a response.

**Thank you for your understanding ;-)

Next message: E.: "Re: Inverted Nipples ATT: E.R."
Previous message: Lynn D. Montgomery, MD: "Re: Taking fiber with my prenatal vitamin"
In reply to: Andrea: "Pena-Shokeir Syndrome"

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