PREGNANCY-BIRTH Messages for April, 2000: Re: Disability

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Re: Disability

From: Kelly Shanahan, MD (anonymous@obgyn.net)
Thu, 20 Apr 2000 00:08:27 -0500 (CDT)

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At Wed, 19 Apr 2000, Kevin wrote: >
>I subscribe to another list where I am in contact with young women (Teens) who are pregnant. One girl has recently been asking for more information regarding how her disability will affect her pregnancy.
>
>Quote: "I have a rare syndrome...femoral hypoplasia with unusual facies with
>multiple congenital anomalies syndrome...I have one short leg, knees are not
>where they should be...I have short arms...I am about 3'3-3'4 in height...I
>weigh about 85 lbs. I'm so scared because my mom had
>said there might be a chance of me not surviving or the baby not
>surviving....I dont want that to happen and I dont want to disappoint my mom
>either...."
>
>Can anyone shed any light on this for me so I can respond with more knowledge.
>
>Lynne Carney

This poor young women, to have her mother saying such negative things to her!! I hope she has others who can provide positive support for her -- and hwat about her doctor?? That is the person who knows best what is going on and can best counsel her.

As for her not surving -- Hogwash!!! She may well have a much higher chance of needing a c-section or having preterm labor due to her condition, but with good prenatal care, she should certainly survive the experience! If there was a high chance of mortality the docs who have recommended an abortion. She needs to see a genetic counselor to get information on the chances of the baby being affected (I don't know anything about her particular condition).

Please encourage this girl to seek prenatal care and referal to a genetic counselor, and perhaps a psycholgist as well to help her deal with the negativity that seems to emanate from her family.

-- M. Kelly Shanahan, MD, FACOG S. Lake Tahoe, CA

Replies are for educational purposes only and do not construe a doctor-patient relationship; they do not take the place of a face-to-face consultation with your own doctor.

PRIVATE E-MAILS WILL NOT BE ANSWERED! My daughter deserves some of my very limited free time!

Next message: Lynn D. Montgomery, MD: "Re: Not Dialating"
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In reply to: Kelly Shanahan, MD: "Re: Raspberry Tea"

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