PCOS Messages for September, 2003: Re: For Marie//for barbara while this is stil l up

Re: For Marie//for barbara while this is stil l up

From: Marie (anonymous@obgyn.net)
Tue, 30 Sep 2003 21:00:27 -0500 (CDT)

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In reply to: Barbara: "Re: For Marie//"

At Mon, 29 Sep 2003, Barbara wrote:

Hello Marie: Wow,this is way over my head,lol!-I don't understand all this. I am just going to print this out and do a bit of research...then ask my doctor about these tests.I had been in the hospital for observation in internal medicine and immunosystem deficiency.I can honestly tell u that none of these tests were done because I do have a file about three feet high with documented abnormalites..none of the afformentioned tests had been done to my knowledge.

First,If u don't mind-I would like to ask you about what a couple different abbreviations stand for. I was told I had drug induced lupus firstly... [DRUG INDUCED LUPUS WILL RESOLVE ON IT'S OWN IN TIME WHEN ENOUGH TRIGGERS ARE REMOVED AND ALLOW YOUR BODY TO HEAL IT'S SELF, HOWEVER YOU MAY NOT TEST POSITIVE FOR LUPUS, ALSO CHECK OUT DRUG HYPERSENSITIVITY SYNDROME AND LYMPHEDEMA FOR SWELLING HERE'S A LINK FOR CANADA: http://www.lymphovenous-canada.ca/ I also had a rare form of diabetes insipidus in 1999 where I could not stop urinating.I thought for sure I was going to die.The endocrinologist at the time(snooty witch),said it was no big deal because it cured up on it's own.My question to her was why I got it in the first place.This was long before my diagnosis of PCOS,but when I was getting strange symptoms where I was actually referred for a psychological assessment...proved I was not crazy..my GAf or whatever was well above normal and the shrink seen my purple,swollen feet and legs..this cannot be in one's head.I had pains in my legs that I could not explain them properly,or they just didn't like my explanation of saying they were throbbing,puslating to my heart and icy cold like when one is freezing.....I was unable to sweat...nobody believed me.....

DYSAUTONOMIA EITHER PURE AUTONOMIS FAILURE(PAF) OR MULTISYSTEMSTROPHY, ALSO STEVENS JOHNSON SYNDROME(SJS)FROM DRUG REACTIONS CAN CAUSE LACK OF SALIVA AND DRY EYES GO TO SJSSUPPORT@AOL.COM I know now there is a disease(cannot remember )where one does not have the ability to sweat.I had absolutely no saliva...thus recently I had 13 grand of dental work done...I just had feelings of my whole body in a surge of adrenaline..pounding heart...not for an hour..but all day......I would heat up like a stove.I still have those moments.The symptoms I have just don't fit neatly into a box of one illness..or do they?I get extremely hyper..but no energy to follow through on things.Showering has become my two daily work outs of the day with some walking.I feel I have the strength,,but when I start doing something..I just near collapse..and have collapsed on many occassions.I don't know what is the matter with my body. OKay-here's the questions:

Dear Barbara, I'm sorta tired this morning and appologise not getting to you sooner this morning.

NO PROBLEM-I APPRECIATE YOU TAKING THE TIME TO HELP ME!!

Adrenal insufficiency can also be, adrennal dysfunction, there is but one name for it, if your levels are high in am and low in pw that's bass-ackwards!!!!!

yEAH,I FIGURED THAT OUT TOO BUT NOBODY WOULD LISTEN TO ME. ACTUALLY IT IS MY CORTISOL LEVELS..IS THAT THE SAME AS ADRENAL INSUFFICIENCY?IS DHEA DIFFERENT.MY DHEA'S ARE ELEVATED ALL THE TIME.

Most likely, the answer is in your chart, your doctor should check out all adverse/non-reactions to Rx, it is just as important to know when something doesn't do anything and when you have an overt reaction along with a history of your Rx as far back as you can go,

YES,ALL MY PROBLEMS STARTED AFTER USING MEDICATION....LUVOX....THEY PUT ME ON IT WHEN I FIRST STARTED FALLING AT WORK...THEY RULED OUT MS....THEN SAID IT WAS STRESS AND THAT I WAS COMPULSING ABOUT MY WEAK LEGS...AFTER LUVOX AND ZOLOFT AND A FEW MORE TRIALS WHICH MADE ME WORSE...I STARTED DEVELOPING HEART PROBLEMS...THE DIABETES INSIPIDUES AND MORE...

also have you have an immune work up, a really good one, some APA's can cause some strange things, and drug induced are different that other types, if you have never had anything but RSA(9)I'm wondering if maybe you have a cross reactive APantibody for HCG????These also react with LH FSH TSH...... I WOULD IMAGINE I HAD,BUT NOT A THOUROUGH ONE.WHAT ARE APA'S?ANTIPHOSLIPID ANTIBODIES APA's, RECURRENT SPONTANTIOU ABORTIONS EG MISCARRIAGES RSA's, YOU HAD 9?

WHAT IS RSA(9)? WHAT IS A CROSS REACTIVE APANTIBODY FOR HCG AND WHAT IS HCG???SORRY FOR MY ILLITERACY HERE?

Have you had Prednesone or IVIg????? HELP WITH APA RELATED MISCARRIAGES AND CLOTTING/BLEEDING MISCARRIAGES, MOST LIKELY YOU WANT TO AVOID ASPARIN/NSAIDS/MOST ANTIBOTICS AND SULFA

DON'T SEE THAT IN MY FILE AND DON'T KNOW WHAT IT IS

If you have drug induced lupus it's a horse of a different color

There is the whole complex issue of CYP450 interactions....RELATED TO DRUG INDUCED LUPUS AND DRUG MYPERSENSITIVITY SYNDROME AND SJS.......YOU BODY MAY SEE HCG THE PREGNANCY HORMONE AS AN INVADER BECAUSE HCG LOOKS LIKE THE SAME THINGS AS THESE ANTIBODIES LOOK FOR, IVIg MIGHT HELP CYP450?????????????? TAKE CARE.MARIE

Next message: Karla: "Re: anyone ever taken clomid when they were already ovulating regularly?"
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In reply to: Barbara: "Re: For Marie//"

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