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Re: First I was diagnosed with PCOS, now my endocrinologist says not? Experienced PCOS ladies, please helpFrom: Barbara (anonymous@obgyn.net)Fri, 26 Sep 2003 06:14:20 -0500 (CDT)
At Mon, 25 Jun 2001, Holly wrote: > >Anna, > >Hang in there! One thing I can mention is the stretch mark thing...I >started getting stretch marks before I was THAT overweight...and I did a >lot of research. While stretch marks are usually caused by rapid weight >gain or loss, they can also be caused by hormonal changes. Voila! >Mystery solved perhaps... > >I'd work with your doctor closely on the new tests. PCOS can be very >similar to other Endocrine disorders and you really need to know which >one you have to receive appropriate treatment. > >Good luck and keep us updated! > >-- >Holly > >At Sun, 24 Jun 2001, Anna wrote: >> >>I've been feeling badly for almost 2 years. 3 months ago, I saw a >>highly recommended endocrinologist. She did some tests, and told me I >>had PCOS because my LH and FSH were greater than 2:1. I started 2000 mg >>Glucophage XR. >> >>I saw her for a recheck visit on Tuesday. Since being on the >>Glucophage, I've developed severe mood swings, ranging from depression >>to rage. Both my psychiatrist and psychologist said that it was related >>to whatever was wrong with my hormonally, not an emotional problem. My >>doctor was very concerned when she heard about those symptoms. >> >>What really shocked her was looking at my skin. I'm 5'8 and currently >>weight 165 lbs. At my heavyest, I was 177 lbs. I have stretch marks >>covering 90% of my body. I had them when I originally saw her, and we >>ran tests for Cushings, which came back negative. The stretch marks >>have continued to grow, even with working out and slight weight loss. >>When she saw that the marks are still growing, she said I did not have >>PCOS, that something else was very wrong. >> >>I have marks covering my entire breasts, my upper arms, my hips, my >>stomach, from my hips to below my knees. The new marks now go below my >>knees. My calfs are not fat!! In fact, I've never been obese, just on >>the heavy end of my acceptable weight. I though you had to really gain >>a lot of weight (like 100 pounds) to get these stretch marks. And yes, >>the ones on my stomach are purple-red. >> >>I'm also heat intolerant. I can't sleep in the same upstairs bedroom >>with my husband, because it feels like a furnace. I sleep downstairs, >>where it's very cool. When I'm comfortable, people around me are >>freezing. My energy level is really not what it should be. >> >>I haven't had a period in over a year, and my sex drive is non-existant. >>My doctor is redoing the Cushings tests, but told me if they are >>negative, she'll continue to look. She is talking about doing a MRI on >>my adrenal glands to see if there is a tumor. >> >>She is convinced that I don't have PCOS, that whatever is wrong with my >>endocrine system caused the LH, FSH ratio but it didn't mean PCOS. She >>told me that endocrine problems are hard to diagnose. And I found a >>journal article on Medline that says that the 2 standard tests for >>Cushings can sometimes not detect mild cases. There is a special test >>that detects all levels of Cushings, and I've not had that done. My doc >>wanted the journal article and I sent it to her. >> >>I'm so confused. I've read so much from you ladies, and I think >>sometimes you know more than some doctors do. Looking at my symptoms, >>is this PCOS or not? I'm going to continue testing with my doc, I just >>wanted to get an opinion from someone who's lived PCOS. >> >>Thank you so much for any input. I just feel so lost. >> >>-- >>Anna >> >-- >Holly >holly.laclair-bogedain@medstat.com >
-- Anna,
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