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Re: First I was diagnosed with PCOS, now my endocrinologist says not? Experienced PCOS ladies, please help
From: Anna (anonymous@obgyn.net)
Fri, 5 Sep 2003 18:29:49 -0500 (CDT)
I am trying to figure out if I have Cushings syndrome and was wondering
if you could send me the information and/or name of the test that
detects all levels of Cushings that you were talking about, even the
name fo the test would be helpful, please send it to my email address
toriswrrl22@aol.com thank you Anna.
At Mon, 25 Jun 2001, Sonnet wrote:
>
>Anna, I've got no idea what's going on with you but I wanted to offer a
>hug and say hi!! Those stretch marks do sound very worrying - I thought
>they were associated with Cushings (but not in that number?) so in any
>case its good she is redoing those tests. I will definitely keep an eye
>out for you and we will see what we can find out!
>
>At Sun, 24 Jun 2001, Anna wrote:
>>
>>I've been feeling badly for almost 2 years. 3 months ago, I saw a
>>highly recommended endocrinologist. She did some tests, and told me I
>>had PCOS because my LH and FSH were greater than 2:1. I started 2000 mg
>>Glucophage XR.
>>
>>I saw her for a recheck visit on Tuesday. Since being on the
>>Glucophage, I've developed severe mood swings, ranging from depression
>>to rage. Both my psychiatrist and psychologist said that it was related
>>to whatever was wrong with my hormonally, not an emotional problem. My
>>doctor was very concerned when she heard about those symptoms.
>>
>>What really shocked her was looking at my skin. I'm 5'8 and currently
>>weight 165 lbs. At my heavyest, I was 177 lbs. I have stretch marks
>>covering 90% of my body. I had them when I originally saw her, and we
>>ran tests for Cushings, which came back negative. The stretch marks
>>have continued to grow, even with working out and slight weight loss.
>>When she saw that the marks are still growing, she said I did not have
>>PCOS, that something else was very wrong.
>>
>>I have marks covering my entire breasts, my upper arms, my hips, my
>>stomach, from my hips to below my knees. The new marks now go below my
>>knees. My calfs are not fat!! In fact, I've never been obese, just on
>>the heavy end of my acceptable weight. I though you had to really gain
>>a lot of weight (like 100 pounds) to get these stretch marks. And yes,
>>the ones on my stomach are purple-red.
>>
>>I'm also heat intolerant. I can't sleep in the same upstairs bedroom
>>with my husband, because it feels like a furnace. I sleep downstairs,
>>where it's very cool. When I'm comfortable, people around me are
>>freezing. My energy level is really not what it should be.
>>
>>I haven't had a period in over a year, and my sex drive is non-existant.
>>My doctor is redoing the Cushings tests, but told me if they are
>>negative, she'll continue to look. She is talking about doing a MRI on
>>my adrenal glands to see if there is a tumor.
>>
>>She is convinced that I don't have PCOS, that whatever is wrong with my
>>endocrine system caused the LH, FSH ratio but it didn't mean PCOS. She
>>told me that endocrine problems are hard to diagnose. And I found a
>>journal article on Medline that says that the 2 standard tests for
>>Cushings can sometimes not detect mild cases. There is a special test
>>that detects all levels of Cushings, and I've not had that done. My doc
>>wanted the journal article and I sent it to her.
>>
>>I'm so confused. I've read so much from you ladies, and I think
>>sometimes you know more than some doctors do. Looking at my symptoms,
>>is this PCOS or not? I'm going to continue testing with my doc, I just
>>wanted to get an opinion from someone who's lived PCOS.
>>
>>Thank you so much for any input. I just feel so lost.
>>
>>--
>>Anna
>>
>--
>Email always welcome to: sonnet_fitz@hotmail.com
>
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