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HelpFrom: anonymous (anonymous@obgyn.net)Wed, 20 Aug 2003 13:49:11 -0500 (CDT)
I was diagnosed at 19 years old with PCOS. I went into the hospital because I could not move with out tossing my cookies. I had cramping so bad that I cried for 32 hours before my father (who said I was just a baby) took me into the hospital. I was given test and sent home after they pumped me full of medications. I was sent back to school (at the time I was in college) and called the next day to go in for emergency surgery. I had so many cysts that they believed that both of my ovaries were twisted. I went in for the sonogram and the internal sonograms and that was when they found the PCOS. They put me on the birth control shot because it would stop my period. I came off of it 6 months later after I had gained 80lb. I was very active I played volleyball in school and the doctor told me I could not do anything any longer. No running, or high impact exercises because my ovaries were so swollen my stomach felt like sold rock for months. After I came off the medication my doctor told me there was nothing they could do. That was 7 years ago and I have been in chronic pain ever since. I have on average 5 cyst per week and that is guessing low. I am now over 220lb, (when it first happened I weighed 140lb at 5'11) I am depressed, I exercise regularly, I eat one meal a day and I still can't lose the weight. I have not slept all night because I had 7 pop last night. I hurt all the time. I don't want any medication I want them out. Every doctor I went to said they wont take them out because of my age. I need help. I can't be in this pain any more. My back hurts all the time, I get migraines weekly, I am losing my hair at 26 and my husband and I are tired all the time. My chest grew 3 sizes, I may have a period for 6 months at a time and then not again for 6 months or so. It comes and goes when it wants. I have a high stress job that I love and am not willing to quit because of this. I need help!! Desperately I need help... Please someone anyone. We have wanted 2 children and I just can't take this pain any more... please please help I can’t take this any more. Hopelessly yours, Darcie
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