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Re: PCOS digest 2735

From: Veronica (anonymous@obgyn.net)
Wed, 13 Aug 2003 08:12:36 -0700 (PDT)


please unsubscribe me

anonymous@obgyn.net wrote:PCOS Digest 2735

Topics covered in this issue include:

1) Re: Sonnet by sonnet@pcosupport.org (Sonnet) 2) Re: no symptoms by anonymous@medispecialty.com (anonymous) 3) What to do? by anonymous@medispecialty.com (Jennifer) 4) Re: Sonnet by mel.poxy@btopenworld.com (Mel) 5) Re: What to do? by anonymous@medispecialty.com (anonymous) 6) Re: What to do? by plushkanyc@aol.com (Jennifer) 7) I want to get pregnant...now what? by anonymous@medispecialty.com (Ashley) 8) Re: pcos by florencehatfield@sbcglobal.net (Floey) 9) The cost of PCOS by cfaison40@aol.com (Cathy) 10) Accutane re: PCOS by anonymous@medispecialty.com (anonymous) 11) Re: Does Metformin shrink cysts? by anonymous@medispecialty.com (SallyC) 12) Re: Sonnet by anonymous@medispecialty.com (SallyC) 13) Re: Sonnet by anonymous@medispecialty.com (Anna) 14) Pregnant and Meeting with Endo tomorrow by anonymous@medispecialty.com (Anna) 15) Re: no symptoms by Tric1414@hotmail.com (Tric) 16) Re: Success with Vaniqa; Anyone else? by gooanna@hotmail.com 17) PCOS/BREASTFEEDING/MENOPAUSE by suepace@xtra.co.nz (Sue) 18) confused ... by ranagalla@hotmail.com (raj) 19) Re: I want to get pregnant...now what? by mel.poxy@btopenworld.com (Mel) 20) Re: Actos and weight gain-time to quit by anonymous@medispecialty.com (anonymous) 21) Re: Actos and weight gain-time to quit by Michelle Simmons 22) Re: Sonnet by sonnet@pcosupport.org (Sonnet) 23) Re: The cost of PCOS by "Lori Stair" 24) Adult ADV - Summer Blow Out by "Linda" <52690343878@your--girls.com>

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Date: Tue, 12 Aug 2003 11:44:21 -0500 (CDT) ---------------------------------------------------------------------- From: anonymous@obgyn.net (Sonnet)

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To: anonymous@obgyn.net
Subject: Re: Sonnet
Message-ID: <200308121644.h7CGiLZ28464@dns.obgyn.net>

I'm starting to be afraid I never will! Years from now she'll still be in there.... ordering in pizza and taking correspondence courses, or something... *sigh*. We had a failed induction last Tuesday and tomorrow's our next OB appt to figure out what to do to get her out. Darn the OB's taht all told me we'd be doing well to make it to 32 weeks or who freaked out and put me on bedrest at 34. I assumed at 37 weeks I'd go off bedrest and start moving and she'd just fall out! Ironic how she's all comfy in there now!

Thanks for asking tho' :) How's you?

At Tue, 12 Aug 2003, Mel wrote: > >Lord Lady, haven't you popped yet?? > >Huge loves > >-- >Mel >xxxxxxxxxxxxxxxxxxxxxxxxxxxxx >

--
email always welcome: sonnet_fitz@hotmail.com

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Date: Tue, 12 Aug 2003 13:24:09 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (anonymous) ------------------------------ To: anonymous@obgyn.net Subject: Re: no symptoms Message-ID: <200308121824.h7CIO9B29112@dns.obgyn.net>

At Mon, 11 Aug 2003, Tric wrote: > >I was just going through some other posts and I realized a possible >link. Painful sex has always been a huge problem for me. I have only >had one partner, my husband, and luckily he is extremely patient and >understanding because we NEVER have sex! For one thing my sex drive is >nada and the other thing is that I get a burning pain inside on the >left. We have tried lubricant etc. and it still feels like he's >tearing through me. I have never brought this up to any doctor, thought >it might go away with time. However now that I have been doing more >reading could that be related to PCOS. I do have painful periods for >the first two days but I never thought it might be out of the ordinary. >Can anyone describe to me where you might feel pain during sex, it's >different from my pain during periods which is definately my ovaries. >Thanx for your patience, I'm one confused and curious chick! > >-- >Tric >

Tric, painful sex can happen for many reasons, including hormonal, infections (like yeast or bacteria), irritations, and allergies to certain lubricants/soaps. You should definitely discuss this with your doctor. Consider seeing a specialist for this. There are doctors out there (depending where you live) that specialize only in vulvar and vaginal problems and problems having sex. I would suggest you don't jump to conclusions just because you read that others with pcos have that same complaint. There are other hormonal problems that can cause you to have painful sex. Again, you need to discuss this as well as your other concerns with a doctor. There are many women out there with this problem who have gotten help and are able to have sex again. Good luck. >>

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Date: Tue, 12 Aug 2003 15:12:00 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (Jennifer) ------------------------------ To: anonymous@obgyn.net Subject: What to do? Message-ID: <200308122012.h7CKC0g31792@dns.obgyn.net>

I was diagnosed with PSO at 18 after cramps so bad I was rushed to the hospital for apendicitis! The OB/Gyn did not explain much about it to me, other than that I would have to start birth control. Everything was fine until college when my migranes became more frequent. The PA told me to stop taking the pill NOW otherwise I might DIE!! (direct quote - a little alarmist to say the least!). I stopped taking the pill and also graduated which meant that I no longer had insurance. 6 months of no period and severe acne (which the pills never did get rid of completely)later and I moved to NYC and saw a new doctor. She also diagnosed me with PSO and explained a little more to me. I went on Mircette and things seem to have gotten worse. I have gained over 20 pounds in a year and my hirsutism is really bad. I don't have migranes, and my acne is at least bearable at the moment. The worst thing is that I seem to have chronic yeast infections. I obviously told my new doctor about this during my 15 visits to her this year and she doesn't seem to be bothered by it - just keeps prescribing Mircette and Diflucan.

Who should I be seeing and what should they be giving me? I am really concerned and I don't really know what to do!

Sorry so long, and thanks!

--
Jennifer

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Date: Tue, 12 Aug 2003 15:38:47 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (Mel) ------------------------------ To: anonymous@obgyn.net Subject: Re: Sonnet Message-ID: <200308122038.h7CKclB30366@dns.obgyn.net>

Too darm hot, it's 35 degrees here, darn it we English do not do over 28 degrees!! I am really unhappy with my acpuncturistst the moment, so I look around for another one. Other than that good, I have lost more weight yeah!! and DH and I have started to swim together 3/4 times a week. I am taking Vitex and have had no reaction yet, lol I have only been taking it for a few days. We are feel far more positive about TTC now so we will keep doing what we have to!!

Poor you, have you tried a hot Curry, hot bath , and god forbid hot Lurving!!!! (SORRY TOOO MUCH) . I will be thinking moving thoughts for you over the next few days.

You, Pete and Amy take care, Amy give your Mommy a break already and come on out!

Huge loves to you

Mel xxxxxxxxxxxxxxxxxxxxxxxxx

At Tue, 12 Aug 2003, Sonnet wrote: > >I'm starting to be afraid I never will! Years from now she'll still be >in there.... ordering in pizza and taking correspondence courses, or >something... *sigh*. We had a failed induction last Tuesday and >tomorrow's our next OB appt to figure out what to do to get her out. >Darn the OB's taht all told me we'd be doing well to make it to 32 weeks >or who freaked out and put me on bedrest at 34. I assumed at 37 weeks >I'd go off bedrest and start moving and she'd just fall out! Ironic how >she's all comfy in there now! > >Thanks for asking tho' :) How's you? > >At Tue, 12 Aug 2003, Mel wrote: >> >>Lord Lady, haven't you popped yet?? >> >>Huge loves >> >>-- >>Mel >>xxxxxxxxxxxxxxxxxxxxxxxxxxxxx >> >-- >email always welcome: sonnet_fitz@hotmail.com >

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Date: Tue, 12 Aug 2003 15:45:14 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (anonymous) ------------------------------ To: anonymous@obgyn.net Subject: Re: What to do? Message-ID: <200308122045.h7CKjEe05960@dns.obgyn.net>

At Tue, 12 Aug 2003, Jennifer wrote: > >I was diagnosed with PSO at 18 after cramps so bad I was rushed to the >hospital for apendicitis! The OB/Gyn did not explain much about it to >me, other than that I would have to start birth control. >Everything was fine until college when my migranes became more frequent. >The PA told me to stop taking the pill NOW otherwise I might DIE!! >(direct quote - a little alarmist to say the least!). I stopped taking >the pill and also graduated which meant that I no longer had insurance. >6 months of no period and severe acne (which the pills never did get rid >of completely)later and I moved to NYC and saw a new doctor. She also >diagnosed me with PSO and explained a little more to me. I went on >Mircette and things seem to have gotten worse. I have gained over 20 >pounds in a year and my hirsutism is really bad. I don't have migranes, >and my acne is at least bearable at the moment. The worst thing is that >I seem to have chronic yeast infections. I obviously told my new doctor >about this during my 15 visits to her this year and she doesn't seem to >be bothered by it - just keeps prescribing Mircette and Diflucan. > >Who should I be seeing and what should they be giving me? I am really >concerned and I don't really know what to do! > >Sorry so long, and thanks! > >-- >Jennifer >

If you still live in NYC you are in luck. There are several PCOS experts and endocrinologists in NYC as well as a fantastic doctor(who unfortunately doesn't take any insurance, but is well worth the price) who specializes in vaginal problems, including yeast infections. I am not sure if we are allowed to post names of doctors in this forum. Can someone let me know how to give Jennifer some names?

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Date: Tue, 12 Aug 2003 15:54:58 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (Jennifer) ------------------------------ To: anonymous@obgyn.net Subject: Re: What to do? Message-ID: <200308122054.h7CKswE20562@dns.obgyn.net>

That would be very helpful - I made my email unanonymous, so you can email me the info if you like. I am very tired of dealing with docs who just throw pills at me and are surprised when I question them. I think my insurance covers only 3 endocrinologists in NYC, so hopefully one of them is a good one! I would also LOVE to get rid of the non stop yeast infection. Diflucan twice a month doesn't help, monostat, metrogel you name it nothing helps. I will pay for that kind of relief!!!!! :)

Thanks much for your help and I will look for your email (if you feel comfortable with that.

At Tue, 12 Aug 2003, anonymous wrote: > >At Tue, 12 Aug 2003, Jennifer wrote: >> >>I was diagnosed with PSO at 18 after cramps so bad I was rushed to the >>hospital for apendicitis! The OB/Gyn did not explain much about it to >>me, other than that I would have to start birth control. >>Everything was fine until college when my migranes became more frequent. >>The PA told me to stop taking the pill NOW otherwise I might DIE!! >>(direct quote - a little alarmist to say the least!). I stopped taking >>the pill and also graduated which meant that I no longer had insurance. >>6 months of no period and severe acne (which the pills never did get rid >>of completely)later and I moved to NYC and saw a new doctor. She also >>diagnosed me with PSO and explained a little more to me. I went on >>Mircette and things seem to have gotten worse. I have gained over 20 >>pounds in a year and my hirsutism is really bad. I don't have migranes, >>and my acne is at least bearable at the moment. The worst thing is that >>I seem to have chronic yeast infections. I obviously told my new doctor >>about this during my 15 visits to her this year and she doesn't seem to >>be bothered by it - just keeps prescribing Mircette and Diflucan. >> >>Who should I be seeing and what should they be giving me? I am really >>concerned and I don't really know what to do! >> >>Sorry so long, and thanks! >> >>-- >>Jennifer >> >If you still live in NYC you are in luck. There are several PCOS >experts and endocrinologists in NYC as well as a fantastic doctor(who >unfortunately doesn't take any insurance, but is well worth the price) >who specializes in vaginal problems, including yeast infections. I am >not sure if we are allowed to post names of doctors in this forum. Can >someone let me know how to give Jennifer some names?

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Date: Tue, 12 Aug 2003 16:06:00 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (Ashley) ------------------------------ To: anonymous@obgyn.net Subject: I want to get pregnant...now what? Message-ID: <200308122106.h7CL60U03436@dns.obgyn.net>

I'm on the pill and I want to start trying to get pregnant around December. What steps do I need to take as far as getting off of the pill and on to something else? I'm pretty new to PCOS, so I don't know what other meds are available to keep the cysts from forming other than birth control. Thanks.

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Date: Tue, 12 Aug 2003 19:41:15 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (Floey) ------------------------------ To: anonymous@obgyn.net Subject: Re: pcos Message-ID: <200308130041.h7D0fFM09453@dns.obgyn.net>

At Mon, 11 Nov 2002, terri wrote: > >I was a patient of Dr. Futterweits almost 25 years ago. As a minor i >was not in control of my medical care. He was on the right track- my >insulin has been crazy for all of these years. If anyone knows of >someone doing long term foolow up on people with PCOS I have had a rough >medical history with multiple sugeries over the years. If my history >can be used to help other young women i will be happy to provide my >history.

I am not a minor but just 30 yrs old. I was just reciently diagnosed with this disorder. I have yet to understand how I was diagnosed after just blood test and nothing else. I have a complicated back ground with my periods and I am willing to learn about this disorder. There are no books in my library at home and need to know more. If you can help me I would appreciate it a lot. Right now I am on Glucophage twice a day and provera every other month and this is not working. I have a cyst the size is 4.7 on my right ovary and they say there is nothing they can do for me. What is my next step?

--
HElp pLease,
Floey

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Date: Tue, 12 Aug 2003 19:42:09 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (Cathy) ------------------------------ To: anonymous@obgyn.net Subject: The cost of PCOS Message-ID: <200308130042.h7D0g9310253@dns.obgyn.net>

Has anyone added up what the cost of this disease to us financially? The multiple medications, doctors visits, days off from work due to stress. Because of this disease, I have hypertension and depression. I am on four medications with a $20 copay for each: 1 for hypertension, 1 for depression, one for acne, and Glucophage (of course). I use to be on BC pills and may have to go back on them. That is almost $100 a month in copays for medicines alone. Not to mention copays for doctor's visits every three months, etc. Of course, the "cure" is to lose weight. The only way I have found to lose weight is to eat practically nothing and workup three days a week. Add the cost of the gym to that, and eating correctly is not cheap! It costs less to eat starchy fatty foods than it does to eat healthy. Add in the costmetic treatments for removal of hair, oily skin, etc, etc.... need I go on.

I am fortunate in the fact that I did not have difficulty in getting pregnant with my children. I do not know the cost of infertility treatments and the like, but I assume they are high as well.

My observation is this. The money is worth it because the end outcome would be terrible. If we do not take care of this "situation" early (I mean before 35), we are faced with future problems. I was almost 40 when I was diagnosed with hypertension. When I was diagnosed with PCOS, they didn't know what they know now. This disease left totally untreated will lead to hypertension, diabetes, cancer, and looking pretty awful (fat, hairless, acne, and a beard... YUCK)

This observation can be provided to any husband that needs reminding how important it is that we take care of the problem now.

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Date: Tue, 12 Aug 2003 20:19:12 -0500 (CDT) ------------------------------ From: anonymous@obgyn.net (anonymous) ------------------------------ To: anonymous@obgyn.net Subject: Accutane re: PCOS Message-ID: <200308130119.h7D1JCa12191@dns.obgyn.net>

I was wondering if taking Accutane could have an affect on whether or not you have PCOS as a result. I starting taking Accutane in 2000 and right after I stop taking the medication is when my menstruatin became irregular. In 2002, it stop all together and just recently I became diagonsed with PCOS. In addition, however, the darken of skin around my neck and between my legs all always exist. I have not been able to lose weight. I am in need of a Breast Reduction however, my insurance company will not provide it for me because they say I need to lose

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