Re: Suffering PCOS for years....Here is my story...
From: anonymous (anonymous@obgyn.net)
Sat, 28 Jun 2003 22:29:32 -0500 (CDT)
At Sun, 29 Oct 2000, Dave wrote:
>
>You poor thing.
>
>>>----- Original Message -----
>From: "Ruby" <anonymous@obgyn.net>
>To: "Multiple recipients of list PCOS" <anonymous@obgyn.net>
>Sent: Friday, October 27, 2000 3:38 PM
>Subject: Suffering PCOS for years....Here is my story...
>
>> I apparently have been suffering PCOS since my teen years. But I was
>> only diagosed about 6 years ago. During my teen years, I would only
>> have a period every few months. I was slim 110 lbs. (I was very active
>> and very bulimic). I had been heavy during childhood, subject to
>> low-self esteem, ridicule...etc. When I was 17 I suffered 3 months of a
>> light period. The GYN did a DNC and put me on bc. pills, they made me
>> very sick and I was taken off them. During college, I would not have a
>> period all semester until the day finals were over. Go figure? Stress?
>> Got on birth control a couple months before I got married. Got off bc.
>> pills 1 year later in Nov. to try and have baby. PCOS took hold. I
>> didn't have period, but started bleeding in February, '92. By March, I
>> was bleeding so heavy, my doc. did a endometrial biopsy, which
>> indicated that I had not ovulated. He did a DNC and then put me on
>> clomid for 2 months. I began bleeding again, even heavier. Another
>> doc. I had to see while mine was on vacation, put me on bc. pills and
>> the bleeding stopped. But by the time I finished the pills, the
>> bleeding started again, even heavier. I was so sick and at work
>> (teacher) and would almost pass out. By now it was May and one day,
>> when bleeding so bad at school. I called by doc. and then went home.
>> He called in Premarin and told me to take 2. After I did that, I
>> started hemorraging and had to have another DNC. Then they just out me
>> back on bc. (Ortha-Novam). From '92 to '96, I stayed on bc. I had
>> normal pill periods, but started suffering panic attacks. (I thought
>> they were heart attacks and ended up in the hospital, 3 times. They
>> said I was o.k. and sent me home. A doc. I saw at the time, thought I
>> needed to see a psycharist because I was so anxious all the time. Well,
>> this floored me, cause I knew I was not crazy, but just nervous. I knew
>> nothing about panic attacks and did seek counseling to deal with the
>> attacks and they helped. I continued counseling for about a year. They
>> put me on Paxil, 20 mg. daily. It helped. Because all my attacks
>> occured while driving, I became phobic of driving and had to carpool to
>> work and would not go anywhere by myself. This lasted about 2 years.
>> Also at the same time I was diagnosed with mitro-valve prolaspe. They
>> started me on Propananol (Inderal) a beta-blocker to cap my adrenalin
>> surges. This helped too. Slowly, with prayer to God and an
>> understanding husband and family, I have fully recoved from panic
>> attacks, I haven't had one in years. Part of what helped was getting
>> off b.c. pills. When I stopped taking them, it was as if a huge wait
>> had been lifted off my sholders, it was like I could breath again. PCOS
>> though, is a totally different story. After I stopped the b.c. pills,
>> the bleeding returned within 6 months. By this time, I had a new gyn.
>> doc. and he finally diagnosed me with PCOS. But his only answer at the
>> time was b.c. pills and fertility drugs. I had tried the clomid and I
>> am not willing to take peranol. In the past 4 years, I will bleed and
>> pass heavy clots from 3 to 6 months. Then it will stop and I will have
>> no period for 3 to 6 months. 2 years ago, I saw an endochronologist and
>> he tested me for diabetes, cushings, horomones, etc. All were negative,
>> except my testostrone was twice what it should be. He suggested
>> metformin at the time and wrote a prescription, I had read about the new
>> drug and was scared of it. I kept the prescription on my refrigerator
>> for two years and then this June 2000 I took all my info to my PCP and
>> he prescribed it took me. Within two weeks of taking the metformin, I
>> had stopped bleeding and during the summer I had one regular period. But
>> then I started bleeding light (as usual), that was in August. Today, I
>> sit here bleeding heavy, passing clots with a doc. appointment at 1:00.
>> I am going to see if he needs to up my dosage of metformin. I am on 500
>> mg. But heard that, often the dosage needs to be increased. If you
>> read this, and would like to share with me your story, I would
>> appreciate it. This is my first time to post a message, although, I
>> occasionally log on to the site.
>>
>> --
>> Ruby
>>
Dear Ruby...I do feel for you,,,I was young in my mid/late 20's and had
a time bleeding non stop..I was white as a ghost...(wonder
why.lol)...The doctor gave me some meds to stop the bleeding..it just
made it clot and cramp so bad...I found out later I had something hid in
my overy,,,hidden real well and could not be seen til they went
in...They saw what was small and when they went in it had totaly take
space in my overy and tube as well..They were only able to see what was
in my tube at the time...The bleeding did stop..there was other problems
as well..I have two daughters,,but I can no longer have more children..
Hear desease runs bad in my family and I am showing problems as
well...One thing I do know..is you know better what is going on with
you...THe one thing I do know is that G-d will give you what you
need,,just believe..It may come with a doctor who can figure things
out..or the time for nature to do it for you...THere are side affects to
everything to some degree..I will pray for you.
Good luck....
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