PCOS Messages for June, 2003: Re: Has anyone been diagnosed, then undiagnosed with PCOS?

Re: Has anyone been diagnosed, then undiagnosed with PCOS?

From: anonymous (anonymous@obgyn.net)
Sun, 15 Jun 2003 17:15:23 -0500 (CDT)

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Have you ever had your cortisol level checked with a 24-hour urine test? High cortisol levels can also cause all these pcos type symptoms. Just another tip and something to look out for.

At Sun, 15 Jun 2003, anonymous@obgyn.net wrote: >
>One of the tests that they go by is the ratio between LH and FSH, you can be
>in normal limits for each test but if the ratio between them are 3:1 or worse
>then its a sure sign of PCOS, they are still within normal range by
>themselves, its the relation to each other that is the key, also your testosterone can
>be in the normal range and still be considered high for a woman, they don't red
>flag the numbers till they go over and they don't have to be over to be
>diagnosed, the dr. just needs to know how to read the test properly.
>
>In a message dated 6/15/03 4:14:32 PM Eastern Daylight Time, swj_ck@yahoo.com
>writes:
>
>> Hello-I am a newbie, and I apologize profusely if this has ever been
>> posted, but I am reaching desperation. After many years of clueless
>> diagnosis, in 1999 (Milwaukee, WI) I was diagnosed with PCOS through
>> blood tests (no ultrasound) an the process of elimination (i.e. - a 27
>> yr old w/ acne, a recent wt gain of 40 LB's (even though I do not eat a
>> lot) and of course the facial hair and non existent periods.
>>
>> I moved to Madison, WI and had to transfer doc's which made for more
>> frustration. Last year I was UN-diagnosed with PCOS. I was blood
>> tested again (still no ultrasound), and was told all my levels were
>> normal and all the other symptoms were due to the fact that "my body is
>> just odd".
>>
>> Perhaps - then they sent me out the door. No further explanation or
>> help. Guess I am just a freak of nature then. Thanks for your "help".
>>
>> I recently had/have a severe acne outbreak, I am now 50-60 pounds
>> overweight, the hair is abundant and quite noticeably embarrassing, I
>> have severe depression, high blood pressure (only made worse when on the
>> pill) and the only thing different is that I now have regular periods at
>> 31.
>>
>> Because my acne was so severe this May, I went to a Dr here in Madison
>> (not my usual since that person was not available) and this new face
>> looked at me and asked:
>>
>> "Have you ever been diagnosed with PCOS?"
>>
>> I nearly fell off the table. I told her my issues. She was a little
>> miffed (even rolled her eyes when I told her I have never had an
>> ultrasound-though I have asked repeatedly)- but treated my acne, (since
>> what the heck could she do since that was why I was there) and left me
>> with the feeling that I need to get a 3,4,5th opinion about PCOS again.
>> I feel so ugly and horrible inside.
>>
>> Luckily, there is a woman's specialty clinic in my main branch that I am
>> going to see next month. My original diagnosis's records are being
>> transferred yet again to this new person and I have to say, I am not at
>> all hopeful.
>>
>> I am just wondering if anyone out there has had a similar experience?
>> And if so, how did you deal with it (or are dealing with it if it is
>> happening right now) I am really really really really tired of this.
>>
>> Thank you :)
>> ~Carol in Madison WI
>>
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