Re: MY PCOS IS SO SEVERE FEEL ALONE!!!
From: JIJI (anonymous@obgyn.net)
Thu, 27 Mar 2003 10:00:44 -0800 (PST)
Do you have a copy of Colleen Harris' PCOS Dietbook?
Maybe this will help as it did to some women with
PCOS. It has definitely helped me.
--- tiffany <anonymous@obgyn.net> wrote:
> At Tue, 18 Apr 2000, Gina wrote:
> >
> >At Mon, 17 Apr 2000, Victoria wrote:
> >>
> >>I am dealing with severe PCOS. My doctor has told
> me my adrenal glands
> >>are involved what does that mean??? I should have
> asked him more
> >>questions. I am suffering from severe anxiety,
> have severe allergies
> >>and I am the most overweight PCOS patient I have
> ever met. I weigh
> >>almost 500lbs. I was 630lbs two years ago which
> was my peak. I diet
> >>constantly and have no overeating problem though I
> know its hard to get
> >>anyone to believe me. I found out I was
> hypothyroid then after a
> >>massive weight gain. I also have hypoglycemia.
> Sometimes when I come
> >>onto a PCOS board and I see all these Im infertile
> posts! I know it is
> >>very sad to be infertile and I do sympathize but
> sometimes I think many
> >>people dont know how serious this disease can get.
> It has affected me
> >>emotionally, physically and everything else. It
> took me 5 years to
> >>figure it out. I started having symptons when my
> periods were irregular
> >>in college and I wasnt fat at all then. I lost my
> periods at age 21,
> >>while the thinnest I had ever been--210 at 6 feet
> of height and after
> >>that my weight was hard to control but
> controllable then add
> >>hypothyroidism around age 26-7 and all hell breaks
> lose. I gain so much
> >>weight it isnt funny. I know two women who have
> weighed in the high
> >>weights with PCOS but I want to meet anyone here
> who is dealing with
> >>very severe PCOS> My testosterone is high, DHEA is
> high all out of
> >>control. I have signs of hyperadrenalism and low
> cortisol at the same
> >>time. I am covered in black and brown skin spots
> all over. This is a
> >>bad case trust me. I also have memory probs and
> more. I felt so
> >>horrible I felt I had CUSHINGS syndrome which can
> have the same symptons
> >>and my doctor ordered me a CT scan to outrule this
> they didnt find a
> >>tumor on my adrenal glands and otherwise I turned
> out negative--some
> >>hormonal tests for cortisol but this has been 5
> crazy years. I think I
> >>am the worse case out there. I want to meet
> anyone else who is dealing
> >>with the most severe forms of PCOS. Victoria, I
> also have hypothyroidism along with my pcos. I have
> the black skin and thick fur like hair on the small
> of my back. I am newly dx and need support and would
> love to give support. If you would like email me.
>
> --
> HI! I am very interested in what you have written
> in the above letter. I have learned about 6-8
> months ago that I have PCOS. I am so discouraged.
> I have severe pains, extremely bad periods when
> Ihave them and my doctor just seems to keep telling
> me that I should wait and see what happens. I have
> one child and I did not have any kind of drugs when
> I delivered him. My pain gets so bad sometimes the
> only way I can explain it is that it is worse then
> my labor pains. I hate having PCOS!! I am also
> overweight and every time I try to do something
> about it, it doesn't work and I give up. Do you
> have any suggestions on what I should do? Do you
> see an Endocrinologist? HELP!
>
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