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Re: MY PCOS IS SO SEVERE FEEL ALONE!!!From: tiffany (anonymous@obgyn.net)Thu, 27 Mar 2003 08:00:33 -0600 (CST)
At Tue, 18 Apr 2000, Gina wrote: > >At Mon, 17 Apr 2000, Victoria wrote: >> >>I am dealing with severe PCOS. My doctor has told me my adrenal glands >>are involved what does that mean??? I should have asked him more >>questions. I am suffering from severe anxiety, have severe allergies >>and I am the most overweight PCOS patient I have ever met. I weigh >>almost 500lbs. I was 630lbs two years ago which was my peak. I diet >>constantly and have no overeating problem though I know its hard to get >>anyone to believe me. I found out I was hypothyroid then after a >>massive weight gain. I also have hypoglycemia. Sometimes when I come >>onto a PCOS board and I see all these Im infertile posts! I know it is >>very sad to be infertile and I do sympathize but sometimes I think many >>people dont know how serious this disease can get. It has affected me >>emotionally, physically and everything else. It took me 5 years to >>figure it out. I started having symptons when my periods were irregular >>in college and I wasnt fat at all then. I lost my periods at age 21, >>while the thinnest I had ever been--210 at 6 feet of height and after >>that my weight was hard to control but controllable then add >>hypothyroidism around age 26-7 and all hell breaks lose. I gain so much >>weight it isnt funny. I know two women who have weighed in the high >>weights with PCOS but I want to meet anyone here who is dealing with >>very severe PCOS> My testosterone is high, DHEA is high all out of >>control. I have signs of hyperadrenalism and low cortisol at the same >>time. I am covered in black and brown skin spots all over. This is a >>bad case trust me. I also have memory probs and more. I felt so >>horrible I felt I had CUSHINGS syndrome which can have the same symptons >>and my doctor ordered me a CT scan to outrule this they didnt find a >>tumor on my adrenal glands and otherwise I turned out negative--some >>hormonal tests for cortisol but this has been 5 crazy years. I think I >>am the worse case out there. I want to meet anyone else who is dealing >>with the most severe forms of PCOS. Victoria, I also have hypothyroidism along with my pcos. I have the black skin and thick fur like hair on the small of my back. I am newly dx and need support and would love to give support. If you would like email me.
-- HI! I am very interested in what you have written in the above letter. I have learned about 6-8 months ago that I have PCOS. I am so discouraged. I have severe pains, extremely bad periods when Ihave them and my doctor just seems to keep telling me that I should wait and see what happens. I have one child and I did not have any kind of drugs when I delivered him. My pain gets so bad sometimes the only way I can explain it is that it is worse then my labor pains. I hate having PCOS!! I am also overweight and every time I try to do something about it, it doesn't work and I give up. Do you have any suggestions on what I should do? Do you see an Endocrinologist? HELP!
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